Radiation started bright and early today--- I was prepared for a less than 5 minute procedure but it was a lot longer again- and again Grier was very upset--- I could not be in the room at all and I had to talk to him through an intercom--- the door was the size of a bank vault and I could still hear him screaming through that--- we had to stop and stop several times but the first treatment was complete this morning--- we had to go back at 3pm for the second treatment-- went a little better because it was 5 minutes but he does not like this loud "buzzing" noise the machine makes--- tomorrow we are going to being his itouch and play some "Party in the USA" to see if that distracts him-- I HOPE!!! He has 12 more treatments and we need him to stay still--
In between treatments today we did some walking.... FAO was on the top of the list :)--- I can nor believe we made it out of there with NOTHING!! We lunched at Lenny's-- actually took it back to the Ronald.... and then went back to the hospital-- on the way back Grier must have dropped his Ipod when he fell asleep in the stroller--- we did not notice until we looked for it to take into the radiation room-- my mom ended up walking back to try to find it along York Ave--- ( I know some are laughing...) And the luckiest thing happened--- a family found it...called our house in Charlotte-- and Haley told them we were in NYC at Sloan-- The nice woman brought it to security at MSKCC--- and my mom had it back before we got back to the Ronald--- LUCKY Grier!!!
Tonight we went to a Holiday party at the RMDH--- given by MACY's--- it was fun.... they read a story and the kids got the stuffed animal that Macy's did this year--- We are planning on going to the tree lighting tomorrow with the RMDH--- it should be fun -- can't wait to upload pictures---
That is it for now--- Grier is hanging in there-- he opened his "first"square of his advent calendar.... he was funny as we talked about dates in Dec. and when he got to 25 it would be Christmas--- He quickly said I better be home by the time we get to 25!!!
see the other posts about the Cookies for Kids Cancer CHARLOTTE bake sale--- Your help is needed--
Amy
7 comments:
You continue in our thoughts and prayers everyday... Love, Nancy Williams
I am so glad that there are good and decent people in this world, they brought you the ipod!
We are thinking about you and hoping that things go smoothly.
much love from MI,SC!
John and Dee
We are praying for all of you guys in NYC and Charlotte. Maybe God wanted to show you that he is still with you at this time - so losing the itouch and the lady delivering it back - may be a little reminder that God is with us in the small and big things in life.
God bless,
Shannon Deitz
I haven't been able to see Grier at school yet this year; I always seem to find out too late that he's been there. My family is thinking about yours every day and I am posting 'cookie' signs all over Belmont. Grier, I would love to know what other music you have on that ipod--the Black Eyed Peas are very cool. Hopefully you will be back at school ASAP and I can give you a huge high 5!!
Love you!!!
Mrs. Thompson
We are all thinking of you every day! Hope you get to go to lots of fun Christmas parties - will certainly brighten the time you are there.
The WDS moms organizing this phenomenal bake sale are really amazing. You are so fortunate to have them on your team, as well as all the friends who are trying to support you. It's going to be one incredible bake sale!
thanks for keeping us updated on the blog. Hoping each day will get better for Grier (and his mother).
Love,
Janis
Thank you for your amazing blog, Amy.
Thinking of you and praying for you.
We're pulling for you every step of the way!
Hugs to Grier from Karel and me. Mary
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