day four over!

The snow is not so bad--- probably the easiest thing we had to deal with all day-- :) NYC does a fantastic job removing it from the streets and sidewalks---- I was so amazed.... it was not a big deal at all--- I read in the Charlotte Observer (online) that Charlotte is supposed to get some on Friday night--- is that still true??? I am a little nervous about that--- I do not want to have to deal with flight changes and cancellations--- I think I will just assume the observer is wrong ( can you tell I am not a fan---) and hope the weather will hold out-  Please don't email me about my opinion on the CLT observer--- if you only knew how many times I have talked to people about doing a story during Childhood Cancer Awareness Month, and  other fundraisers etc--- and the lack of response I have gotten-- it is just wrong---

Before I go on anymore--- I do not have any results from the MIBG test-- it is driving me crazy-- Grier did really well staying still during his first time without anesthesia in the MIBG--- After he was set -up on the table I asked for the screen to face the wall-- I got a little laugh from one of our nurses.... but I told her I did not feel like pretending I was a radiologist this morning so please just put it somewhere I would not be tempted to look at it- The test was a little over an hour and it was very LONG--- Grier had some tears when the machine was scanning his head-- it gets very close-- he told me he thought it was going to "squish him"-- it moved slowly down his whole body -- so slow that you did not even notice it was moving--
We talked through the whole test about everything even President's Day-- even answered a text from his teacher... :) We had the movie  Alvin and the Chipmunks on but it was a little hard to see--- I guess it was ok not to have him sedated--- I really hate to see tears- but hopefully he will know what is to come next time-- I know the more we can do without anesthesia the easy it will be in the long run.

After the scan we went right up to 3F8---- it was another painful day--- The last two days his face has been all puffy.... so I had a feeling he was going to feel bad most of the afternoon--- and he did! He took a little nap... and woke up looking more like the chipmonks than Grier--- and was feeling nauseous -- that quickly turned into several bouts of vomitting--- He told me... "I can't go to FAO".  I knew he was feeling bad--  He felt a little better after taking some medicine but it is still touch and go- We ended up having dinner here at the house--- they were celebrating the Chinese New Year-- it was nice to get out of these 4 walls for a little-- but Grier can not handle the dining room when he feels bad because it is too loud -- so we headed back up to the room. Let me just say I have seen enough of icarly and spongebob to last my whole life-

He knows tomorrow is the last day--- and is already worrying about getting his port de-accessed.  He also has his bone marrow test tomorrow--- We have to be at the hospital at 7:30 again---- Hopefully it will be on-time so we can get this last round of 3F8 over--

one more shot to go before we have some time off--- actually it will be the longest we have been home in awhile--- not sure the exact date because I may change it because of Jeff's 40th birthday--- we will have to see--  I am hoping to get some time at home--- I am beginiing to feel like a visitor in my own house-  Grier must feel a little the same-- he is much more comfortable walking around the hospital by himself-- at home he will not go in any room by himself--- I did not really notice until he offered to go get me some cranberry juice and he went all by himself (twice)-- I heard him saying "hi" to the nurses as he went-- :)

alright... hope the news comes tomorrow because the waiting stinks---

ps-- we had a new person "clear Grier" for treatment today--- he cracked me up--- She asked what grade he was in ?? And looked at her and said I am not in a grade--- I am in TK- ! He usually does not answer too many questions unless he knows them.