Monday is almost officially over..... It has been a really long day... all 3f8 Mondays are long...!  You just do not know what is going to happen --- it does not matter how many times you have done it.
Grier did ok-- lots of pain.  He did lots of screaming and his breathing was controlled by a breathing treatment and an oxygen blow-by.  He requested lots of hot packs on his back and tummy-- After the hour was done he fell asleep and rested well.  We made it back to the Ronald by 3-- he slept until 7:30--- He is still wide awake now ( almost 10)--- It was a hard day in all the rooms as we listened to the staggered screams.... it is really unbelievable what these kinds go through-- (& their parents)

Grier did have a CT this morning before the antibody treatment.... he stayed still and I was beside him talking about whatever I could think of to distract him--- I don't even remember --  I liked this room better because I was able to wear the lead shield and stand right next to him and hold his hold as the bed moved him through the "doughnut machine"--- We do not know anything from the scan yet--- I hestitate to say no news is good news because I thought that last August and we know where that got us-- Actually forgot all about the CT when we were in the midst of 3F8--- I guess that is a good thing.  Believe it or not but the anxiety from 3F8 makes you forget all about scans--

Tomorrow--- He will only have 3F8--- no scans.... Wednesday he will have an MRI at 11:30--- and then will have 3F8 afterwards.  We will be at the hospital all day on Wednesday which may be a good thing since NY is expecting 12 inches of snow..... Can't wait to take a picture of the stroller in the snow!!

That is it for now--- 4 more days--- or as Grier says... 4 more shots!