The second day of the 3F8 infusion is done--- the side effects went as usual and he is now sleeping off the drugs while we are at the Ronald-
Tomorrow is going to be an interesting day... not because of the added procedures .... it is the weather that will add to the fun. Apparently NYC is going to get a blizzard... schools are closed tomorrow and the weather forcast is 40 mph winds, 10 degrees and 12-18 inches of snow.... Wow-- Grier does not seem too impressed right now--- he is used to Charlotte snowfall so this should be fun... Can't wait to see what the walk to the hospital will be like... :)
I wanted to share the great article that was on Cookies for kids Cancer's Blog--- They really captured the spirit of the amazing bake sale--- Also there is an article in Little One's Magazine--- they were talking about it too--- very exciting!!
Upcoming Event--
HOPE, LOVE & ICE CREAM-
This Sunday is Valentine's Day and Ben & Jerry's @ Parke Towne Village ( Woodlawn Rd- below Jason's Deli) is donating 25% of their sales from 12-9 to Cookies for Kids Cancer. They also are offering the cutest ice crem cakes... they look like conversation hearts. You can call the store and pre-order a cake for the weekend and the best part is that 50% of the sales of cakes will go to Cookies for Kids Cancer-- Please share this with friends--- We hope to see you at Ben & jerry's--- Grier and the rest of our crew will be getting an ice cream treat in between soccer games....
That is it for now-- I am going for a walk--- I need some sunshine and fresh air to clear my head--- It has been two really long days... Grier has done really well... but I can not stop hearing the crys from him and the 8 other kids-- Yesterday was a really tough day as I listened to a Dad yell to his child to wake up and open your eyes-- As I said before you never know what will happen.... and I am reminded that could be any of us yelling those words. I hope his child is OK... I know she had a severe reaction during 3F8 - HOPE for a CURE .... these kids are too little to deal with this.
The Queen City Reigns
“If it takes a village to raise a child, it’s going to take the world to find a cure for pediatric cancer.”
In Charlotte, North Carolina, for a few hours on a rainy Sunday in December, it felt as though the whole world came together to bring an end to pediatric cancer, all inspired by one little boy with one big spirit - Grier Christenbury.
Grier, a 5 year old Charlotte native, was plunged into the world of pediatric cancer at age 2, when he was diagnosed with stage 4 Neuroblastoma. Quickly Grier’s family’s focus shifted from soccer games and school to chemo, radiation, surgery, clinical trials, and most of all, keeping the cancer far, far away from his growing body. And just as quickly, the Christenburys learned of the need for funds for new and improved pediatric cancer treatments. They hoped for new options with fewer long term side effects and risks as well as higher survival rates.
But hope alone is not enough in the world of pediatric cancer. Hope needs action. So, the Christenburys threw their support to Cookies for Kids’ Cancer to raise awareness and funds for pediatric cancer research. Grier’s mom Amy hosted one of the first Cookies bake sales in 2008 and planned to host another in late 2009. Then Grier was unexpectedly thrown back into battle last fall, and the focus, once again, became keeping the enemy at bay.
When friends in Charlotte asked what they could do to help, Amy answered, “Host a bake sale.” And, did they ever. Four weeks, hundreds of sponsors, one radio interview and two local news features later, Amy’s friend Lesa Helbein and her team of tireless (and sleep deprived) volunteers pulled off the biggest single day bake sale in Cookies for Kids’ Cancer history, raising $15,000 in just 4 hours.
The pictures tell the story of the holiday spirit that reigned over the Queen City on that rainy Sunday. Cookies, cupcakes, and kids with smiles greeted Charlotteans who ventured out to support the event, in the end proving that if we all do a little, together it adds up to a lot.
Not every bake sale is this big, with this many supporters. But every bake sale - every single one - is crucial to the world of pediatric cancer. Every penny matters, every dollar helps. Rally the people of your village and register your upcoming bake sale today
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