TGIF--

oops-- I forgot to update on Wednesday...

Grier ended up going to the clinic to have counts checked again on Wednesday.... I figured he was going to need platelets because the shot bled a little too much and bruised right after I gave it Tuesday night ---
His counts came back and his platelet count was 4~ I don't think he has ever been that low before... Grace went with us~ so the three of us headed to the infusion room.... Grier was not disappointed and Grace must like it because she hops up and wants to go with us-- Platelets only take an hour so it was not a crazy long day.... They watched part of a movie and Grier colored NFL team logos...  We were on our way home by 11--- The rest of his counts had not moved much and his infected bug bite on his face had not gotten better or worse.... He had a reaction to the platelets ( hives and itching) after they finished infusing.... so he got some IV benadryl and it seemed to clear up the hives..  The best part of Wednesday for me was a much needed break from House Arrest... I had dinner with MacLean and Lesa and laughed so much that my cheeks hurt...

Thursday was pretty much the same.... We did have a visit from Kids Path (our hospice and palliative care nurse and social worker)-- just a routine visit because we had not seen them in awhile~ so I asked a million questions about things I had to do to get ready for K.... I have been very spoiled with our preschool so going to K is going to be an adjustment for me too--- Let's hope someone at his new schol answers my emails soon... or I might write a whole blog about them :) MacLean also came and helped me.... I started my huge project of organizing Blue Cross/ Blue Shield , MSKCC, and CMC mail..... There is so much paper.... talk about going green.... what a waste!.... After my trip to target to get something to hold all the papers.... I tackled the pile(s) that were scattered all of the living room....

Today was another clinic day and the good news is that he did not need blood or platelets... I was happy... he was not so much... he had big plans for the infusion room... But it did not take long for him to realize that we were going home.... and on a field trip since his counts were up--- We went to the Apple Store to see if I could get Hayes' itouch fixed.... ( some of you know the story...)  and to look around Dick's Sporting Goods-- always an adventure..... but today it was cut short because the boys just could not behave and kept arguing the whole time-- so we left and came home.... I would like to blame it on the heat but they are like oil and water and it is driving me crazy.... add to it a 13 year old "normal" moodiness and I quickly lose my "halo" that I do NOT have!!

This has been a long week.... lock down in the house was tough... also dealing with what everyone deals with normally on top of all the NB stuff has made this week extra long.  The good news is that counts are on their way up--- I give the last ( for now) G-shot tonight and we wait and see what happens on his own.... Also we managed to luck out and stay out of LCH for the first time in between chemo-- We have been home for 12 days in a row.... Monday we go back to the clinic and if all looks good he is going to the Weekday School for a couple of days... cross your fingers--- he needs some school time with his friends...

We plan on starting the next week of chemo on Aug. 2nd--- I use the word "plan" but I shouldn't.... Assuming his counts are good.... and everything else is good he will start the daily 1 hour infusion and pills-- for 5 days.