Last week was SO normal that I decided not to jinx it--- so that is why I did not update---!
After our early morning clinic appointment last Monday, we knew Grier's counts were good... platelets were ok-- not over 100 but all else was good... It was a little like winning the world series and getting asked "what are you going to do now that your counts are up???" Our answer was WE are going to go to school! We headed downtown and Grier went to Uptown Fun~ Grace and I hung out and did whatever she wanted to do until we picked up Grier. Our original plan was to go to Hilton Head for part of the week but after trying to get Jeff to go and he couldn't because of work ... I thought it was going to be fun when I got there but tiring when I got home on Sunday.... and I knew this week was going to be exhausting enough without recovering from vacation... :) So....Grier went all 5 days to Uptown Fun... Grace and I had a nice week being together... shopping for a bike... going to lunch with Hayes and getting her ears pierced... I can't remember the last time this has happened....
Hayes left for Cooperstown , NY to play baseball for a week on Thursday... He is having a good time and his team is doing well... I wish I could see him play a few games-- but missed it last year due to our NY scan trip and this year just couldn't plan it last minute... I can not believe it has been a year since the first relapse--- it has been a fast year... we were in NYC last year during this week with Anne.... trying to show her around to our favorite NYC places at the same time working in all the appointments not knowing the "something" was about to show itself on the CT for the first time.... And since that week a year ago, we have not had a break.. and even a second relapse in the mix while on treatment... ugh!
This week we will leave "normal" and re-enter the clinic Monday-Friday and go to the "confusion" room ( that is what Grier calls it) aka the infusion room--- and Grier will receive his 12th week of chemo-- he will also take an oral chemo for the first time so I am anxious to see how he responds to it... if any side effects. I told him as we were walking to see the cyclist ride the "24 hours of booty"- a bike ride that raises money for cancer research and awareness --www.24hoursofbooty.org...
he was fine with it... and thrilled to hear that we were going to the infusion room.. he is far more adaptable than I am .... I am still a little apprehensive about doing two more weeks of chemo.... I have asked a million times about chemo induced Leukemia and the answer I get is YES.... it is a risk but they will not know if it was these two rounds or the previous rounds... IF it happens no one will know which round caused it... so we just hope it doesn't happen... and that these 2 rounds stay ahead of the next relapse until we try something else.
Last week was full of normal.... trips for school supplies and a Clemson backpack, yoforia, watching the 24 hours of Booty, pool trips, movies, lunch at which wich, school, bike rides and playing with friends.... enjoy the pictures on gogriergo.com... !
Grier and Grace at our usual Monday morning appointment |
Grier's letter from the NY Yankees and box of goodies |
Grier going off the diving board at OP |
MOM-- this is the "ONE " that I want to carry to school~ |
Grace using Grier's "magic cream" on her ears before she gets them pierced~ |
Grace and Grier jumping in the bounce house in Bootyville during 24 hours of Booty~ |
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