Chemo has started today!
Grier has finished day one of chemo-- a one hour infusion through his port of irinotecan and he swallowed three huge chemo (Temador) pills--- so far so good as far as the Big D.... and nausea is concerned! His counts are about the same except his ANC is up to 900--- So all in all I can't complain.. he is eating and in a good mood and a stranger would probably have no idea he had chemo today.... I hope the rest of the week goes as smoothly! I will be sleeping with the pink bucket just in case....
He was ready to get his "medicine" and "fluid" today--- actually ready to take his pills too--- I had no idea what to expect so I was a little more nervous as the drip slowly went in and he swallowed the pills.... His counts should not drop to 0 like they have before since this is lose dose.... and if he had hair it might only thin....
Jumping back in to this routine even after a few days off makes me ill--- Lots of our friends fighting this battle are having a hard time right now and it is just too much sometimes and scary to know what they are going through-- low dose chemo seems to be a cake walk... strange but true!.... I know SLOW and STEADY wins this race... but the cure... or better yet a treatment that is not so toxic needs to hurry up and be found.
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Monday, August 9, 2010
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
1 comment:
Oh Amy --
I know how ready you were to get moving again but I am sure it is bittersweet -- waiting to understand how the sweetest little boy in the world is going to tolerate the new stuff. May this truly work its magic while giving that wonderful boy a good night's sleep (& you by extension.)
Hair is way over-rated. And he really took the pills??? Tell him Pollocks couldn't pull that off till they were double digits!
xo.
Ashley.
Post a Comment