FRIDAY---- and he is done with chemo! I am so glad... The week wears me out... not really physically but emotionally--- I do all the worrying for him and make it as normal of a day as possible... and by Friday my shoulders are tight.... my head hurts and I have not slept well... but that is how I want it -- I don't want him thinking about it-- and I think that is why he is so resilient.... well, I can hope!
His clinic day was the same except he had me laughing a few times.. probably because I was shocked at what he says sometimes.... Today he was talking to our nurse... she asked him how he was feeling and then asked me if he had any diarrhea.... I said no... and he said... YES, I did.... then the nurse said maybe I should just ask him...MAYBE-- obviously I don't know-- Then they were talking football and chatting and he said yes to something and then asked her if she was a mind reader??? I said... what did he just say?? She laughed and commented how he used to not talk at all-- I think he has warmed up--- :) He also joined another little boy and played a jumpin' monkey game.... the hour went fast and we were out of there... I was hoping to not come back until Tuesday or Wednesday but he has to be there on Monday to check his counts....
As we were walking out to check -out- Grier told me that Paula was "the best" at taking out his needle in his port-- so I said... Grier run back there and tell her while I make the next appointment... and he did.... I hope that made her day.... those nurses in the clinic have HUGE hearts to do what they do everyday... the office is crowded and as a good friend says... it is a BOOMING business~
Grace came home from a fun week at the beach and Grier was really excited.... I got to escape to the Toyota service place for the 2nd Friday in a row... and MacLean came and stayed with the threesome.... I am so excited I can leave him when he is not feeling 100%--- there are only a handful of people I would do that with...
He has a few side effects.. and the big D has hit a little tonight but it is manageable--- It doesn't stop him and I am not surprised.... nothing really does these days....
I have told a few friends that I should write down the dumb things people say to us daily--- and I should just so I can remember them.... Today, while we were in the elevator--- a man looked at Grier and said he had a nice HEAD--- really??? That was a first for us-- That is when I want him to come back with one of his comments .... but he just looks at them!
This has been a LONG week.... and I am looking forward to the weekend...
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Friday, August 13, 2010
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
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