Well.... His counts did not move at all. I would have lost a bet if I would have made one.. Especially since we doubled his neupogen last night. His platelet count was 10... usually they give a transfusion for 21 or below.. So he got platelets today.
The rest of the day was spent visiting... We had a busy day with visitors and it made the day fly by. He even had a surprise visit from his teacher and principal! He had a good time showing everyone his collection of legos he has made up here.. He also gave some rides on the hospital bed, played some cards, played a few games of horse and drove his remote control car around the room.
Nothing else new to report.. We have settled into a routine here.. Not ideal but it is working. Hayes and Grace have stayed on their schedule and that is always my goal.. I like to keep them as normal as possible... I am not getting to see them too much since I have only been home for maybe an hour each day -- yes, I am getting tired.. I have been asked how people can help and I just don't know yet. I am just taking each day and being as flexible as I can be. It is frustrating to be here but we don't have control over his count recovery... So we are making the best of it. As crazy as it sounds.. Grier and I manage very well as roommates in a small room with constant interruptions....
I am still hoping for a discharge tomorrow.. We just need to get through tonight and see what the lab results say in the morning...
Goodnight from the 11th floor at LCH..
Sign My Guestbook
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Tuesday, April 12, 2011
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
3 comments:
Amy, Your blog is wonderful as are you. I am so proud of you. My thoughts are with you all. Too bad I did not know to send Grier's class a postcard last month. I will try to find one with a Florida Gator!
Amy, Your blog is wonderful as are you. I am so proud of you. My thoughts are with you all. Too bad I did not know to send Grier's class a postcard last month. I will try to find one with a Florida Gator!
Christenbury family!
We are keeping up with your blogs. Thanks for keeping us posted.
Know that Spring Break is fast approaching. Hope that you get to enjoy it.
Happy Easter.
You are in our prayers.
John and Dee Braswell
P.S. GO TIGERS!☺!
Post a Comment