Today started BRIGHT and early--- around 6am!!! Not bad unless you go to bed after 12am!--- Grier fell back to sleep for another hour and then... I woke to " Can you turn that down?"-- I am assuming he was talking about the street cleaners-- the loud motorcycle that drove by etc.!!! We left the RMDH around 9-- he chose Lenny's for breakfast--- surprised? Well-- I was when he ordered a turkey sandwich!-- I didn't care-- because I knew that was going to be the best meal for him today-- I tried to walk around NY but it was too HOT-- we went back to the Ronald-- and hung out and waited to go to Clinic--- The hardest part of the day was the anxiety he had about what we were going to do at the clinic--- he was worried about the shot-- being accessed and the list goes on-- the finger prick is always at the top of the list!!!

We finally got there at 12:15--- and I heard the morning shift had not started yet-- so we hung out in the playroom!!! Yes-- you heard me right!! The germaphobe went into the playroom! After trying to figure out a game on their wii-- we were called back to be cleared for 3F8-- they said he looks good--- Grier cried the almost the whole time--- occasionally telling Ursula about something-- HOMERUN derby... his Birthday etc.--- but he was tired and not used to doing this-- it has been since mid-April! He has gained weight-- and gotten a bit taller!! After all the talking--- we checked in with Kasey-- our nurse for the day-- I told her I needed help to give the GM shot-- and she did it for me and accessed him--- not fun-- he hates both--- but something we have to do! He fell asleep soon after all that-- and around 3:30-- we finally started 3F8--- He had LOTS of pain---he woke up 15 minutes into and his pain lasted 35 minutes-- he did get sick and I called for help-- Kasey hung out with me until the flush finished! He recieved all 4 rescues today-- which is a first-- tomorrow they will change it up a bit due to his increase in weight--

We left around 6-- walked back and he slept a little while-- he woke up in a fairly pleasant mood-- and we went to the playroom at the Ronald-- yes-- I said that AGAIN-- and played the "boat" video game-- I have tried to talk him into eating but he is not interested-- he did want a coke-- so we took a walk to Duane Reades-- Gristedes ( the closest grocery store has closed!!) Right now, he is awake--watching a movie and having residual leg pain-- I am shocked he has done so well since today was so hard! The one good thing about today was he was able to tell us exactly what was hurting-- so we could put hot packs on it-- and he even asked for medicine-- all while he was doing his breathing exercise-- It must be because he is 4 now! :)

So-- we are done with the first day--