Friday, June 13, 2008

We made it home --- and we had an eventful day!! Grier's 3F8 treatment went well--we got to MSKCC at 7:50-- I was expecting an easy day but it was about the same as the rest of the week-- lots of pain and hives-- He also had the same reactions to the GM shot ( this shot increases his white blood count)--lots of welts at each injection site--

We left the hospital at 1--- walked back and he rested for a little while I made trips down to the lobby to drop off our bags and check out! Our ride came at 2:30--- and the real fun started.... the driver asked me where Morristown , NJ was????-- I had no idea!! I called Corporate Angels they said they did not know how to get there--- and I should call the airport--- So, I did and got some directions-- I was a little worried at that point--- THEN--- we were stuck in traffic on 5th Ave. -- the street we were going to turn on was closed-- so after 25 minutes we ended up back on 72nd and 1st-- 1 block away from the RMDH-- The driver asks what time I need to be there and I said 4pm-- and then his road rage started-- FUN!!! He was driving like a NY taxi driver-- and honking the whole way to NJ -- we finally made it 15 minutes late!! I guess it was good that he was going 80+ on the NJ Turnpike--- or we would have been even later!

Our flight was great-- thanks to BOA for giving us a ride home--

Grier and I are very happy to be home--- We return to NYC the 2nd week of July for the dreaded scans!!! I am going to try not to think about it until it gets closer-- On Monday, he starts the 5th cycle of accutane--- and that is it!! He had a test done and he no longer has to take bactrim to prevent a type of pneumonia --- but the tests also means he is ready to be immunized again ! The first set will be done in July-- but it is starting over-- so it will be a process just like a newborn goes through-

That is it for now--- off to unpack and sleep in my own bed!!!!

10 comments:

Anonymous said...

Amy,
Glad to hear you are back. My brother-in-law used to do that NYC-Morristown commute everyday--via train, that is--slower but without the road rage, I guess!!! So glad you and Grier made the flight and are home safe and sound tonight!
Get some rest--Susan

Anonymous said...

Glad you are home safely tonight --what a nightmare getting to the airport. Aren't NYC taxi cab drivers supposed to know their way to every airport that serves their city??? Do you have to take cab driver classes on how to honk and drive 80MPH???

Glad the week is behind you and you can relax and begin to enjoy the summer. Know you will enjoy celebrating Hayes' b'day tomorrow.

Sleep tight in your own bed tonight! Still keeping you in my prayers each day --

Betty G

Mary Ellen Paine said...

Glad you are home safe. Hope you can get some nice family time. Celebrate birthdays and fathers day. Get some rest and really try to put the thought of scans on the back burner. We will continue to pray for all positive things for Grier.
Be well and enjoy your sweet family.
Love to you all and a very Happy Fathers Day to Jeff.
Mary Ellen

Anonymous said...

Amy,
Not a day goes by that Grier and your entire family is not in our prayers. I check your site every day and prayer accordingly. May God's peace and comfort be with you today and always.

Much love
Laura Black
Greenville, SC

Anonymous said...

Welcome home! I know you are glad to be home with your family. Glad you made it to the airport safely --- what an adventure.

Thinking and praying for y'all!

Love,
Sally, Pete & Molly

Mary Ellen Paine said...

HAPPY FATHER'S DAY JEFF. YOU DESERVE A GREAT DAY.
MARY ELLEN

Anonymous said...

Amy,
Glad to know you're home safe & sound. Hope the welts, rashes, etc. continue to get better this week. Grier was sure on my mind as Abby & I traveled to the NC coast, along with my wristband which reminds me at all times to pray for Grier and your family:)
Sure hope all is well at your house and that you all are having a good day together.
Happy Father's Day, Jeff!
Enjoy!
Lots of love,
Dina

Anonymous said...

Welcome home. We prayed in the Upper room for all of you yesterday. I was told that Grier was at the ball field on Saturday and that made us all smile.

Love, Pat

Anonymous said...

I'm embarrassed I haven't checked the blog since May! And now, having caught up I am totally exhausted! How DO you do it? You are an amazing young lady and Grier is blessed to have you as his mother. Even though I have been remiss in not checking your reports, believe me not a day goes by that I don't offer up a prayer for Grier and your family.
Nora H. Kuester (Cody's granny)

Anonymous said...

Amy,
GLAD YOU ARE ALL HOME! Hope that pillow of yours help you get some much needed (and deserved) rest.

... loved the bday cake photo by the way!!!

Praying for Grier and your family always!

Love
Anne Steppe

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's