Today was much like the other two days--- except his pain was in both arms instead of both legs-- He slept for most of the afternoon-- woke at 5:30 and we walked back to the Ronald-- We did have a visitor today-- Jeanna was here on business and she came to visit at MSKCC-- walked back to the RMDH with us-- we hung out for a little bit then -- walked to Crumbs! We got something for Hayes' birthday-- Thanks It was nice to see her!! Grier was out for all of it--- and now he has a HUGE headache--!
The other news of the day is that he may be nutrapenic-- GREAT!! We will know for sure tomorrow when they draw labs again---So-- We need to be careful-- no deli turkey for him tomorrow until we find out for sure!!
Tomorrow-- we will go at noon again! Afternoon schedule is nice because he is alert for most of the day---but it makes a long day of waiting for what is to come! We may have a flight home on Friday-- I am waiting for Corporate Angels to let us know-- If we do... I am trying to get us switched to morning shift so we can make the flight-
2 more days to go--
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
3 comments:
I was just reading the Caring Bridge comments since I always write through Cov and thought I would check one more time before going to bed and WOW!!, you had updated. Sorry to hear about the arm pain and headyache -- hope he can sleep tonight so you can sleep tonight!
We a cool front today -- down to 90!! -- and a thunderstorm tonight with some much-needed rain. I had just told Cris that we were going to have lots of dead plants in the yard if we didn't get rain soon. It is raining again right now, so everything will look fresher in the morning.
Hope H&G&J had a good day today and I know they are looking forward to Friday when you and Grier come home and you can all celebrate Hayes' b'day! Next year he will be 12 on the 12th -- cool!
I watched the video about the prom -- I had tears in my eyes just watching it. MSKCC is the BEST -- only the best for Grier Christenbury!
Sleep well tonight and hope Grier has less pain tomorrow. Love, hugs, and prayers -- always!!
Betty G
Happy to hear you had a visitor. I am sure that helped pass the time a little. Wish all this pain were gone. 2 More days and you will be on your way home. Thank Goodness.
Well today is Hayes's big day. Happy Birthday Hayes. Enjoy it.
Know we are with you every step of the way. Hope today is allot easier.
Lots of Love to all the Christenbury's,
Mary Ellen
So sorry Grier is having pain, as if he isn't going through enough! I hate that you are having to miss little moments in Hayes and Grace's school days - I know that hurts your dedicated mommy heart!
I hope today will be a good one for you both and that you get that flight home!!!! HOME SWEET HOME!!!
Hugs,
Anne Steppe
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