Friday, July 18, 2008

Three Letters!!

NED-- ( No Evidence of Disease)!

All of Grier's test came back and there is no sign of NB-- we are very thankful but still very cautious -- I hate to be that way but we have seen how sneaky NB can be---
We will continue to go to NYC every 3 months for a full work-up for the next several years-- It is bittersweet that he is off 3F8 at the moment--he will no longer have to endure those painful treatments due to the fact he is HAMA positive. He will finish accutane on July 27th and after all that we just wait and see what happens-- So.. for the next 90 days he will hopefully be as normal as any other 4 year old-- enjoying the rest of summer, starting school in the Fall and loving just being 4!

Thanks for all the prayers --

9 comments:

Anonymous said...

Hooray ! We're all so happy about the "N E D" !
Amy, you express yourself so well - I understand that shifting now back to "normal" is a transition to be made. And I guess if "normal" has a time frame of 90 days it's not the real normal yet.
But here's to lots of happy days here in Charlotte for your entire fabulous family.

The Todds

Anonymous said...

Wonderful, wonderful, wonderful news!! So happy Grier can be a 4-year-old kid going to preschool again! August will be a better school beginning this year than last to say the least!! Thinking about what your family has gone through during the past year is very sobering, but the important thing is that it is behind you, you all came through with flying colors, and you are blessed with good news now!!

Happy rest of the summer to you! Hope you got some time alone this week!

Continuing to send love and prayers every day,

Betty G

Anonymous said...

What's awesome news, Amy! I like NED!!! Hopeful you'll be able to enjoy the following 90 days...Grier being as normal as possible...don't think that will be a stretch...that's all he wants to be anyway, I'm sure.
Would love to get together sometime soon. Mitch is heading to Uptown Fun next week...however, we're available in the afternoons to swim if you're interested. Email me.
Love to all...
Dina

Unknown said...

Wow! That is absolutely fantastic news, Amy, and has just made our day!

The Harrisses

Anonymous said...

Oh joy! Anne told me that Cody got up one morning this week and said he wanted to get to VBS to see Grier. "Grier?" I asked. "Yes!" I couldn't believe it. Let us hope and pray that NED keeps on appearing! NED is good.
You are amazing.
Nora H. Kuester (Cody's granny)

Anonymous said...

That is fantastic news! I had such a great time getting to know Grier and Grace at VBS this week. They are both so sweet and Grier sure does love his big sister! At one point, I asked Grier if Grace is his big sister and he said, "Yes, and I have a Hayes too!" I hope you enjoy your summer!

Mary Ellen Paine said...

What wonderful news that is. I hope and pray that you can all have a little normalicy in your lives. Although this is so wonderful please be assured that not a day will go by that we do not pray for all the Christenbury's.
I will look forward to hearing about Grace's soccer and all the buzz in the household.
Please know I am here for you.
Lots of love to all of you,
Mary Ellen

Anonymous said...

What great news. Although I have never met your family I feel as though I know you. I hope you will continue to update the website periodically to let us know how you and your family are doing. I would love to hear about the kids going back to school and starting up with fall activities - I am sure it will be so exciting for all of you to enjoy these things together this year. As always you will remain in my prayers.

Patti

Anonymous said...

Thank God!! I have always, and will always, have faith.

Lots of love for all of you!!


Bonnie

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's