We are still doing fine! Grace's 9th Birthday is today and I am so glad we are not in the hospital celebrating like we did last year! Grier is planning for Halloween--- yes, he is going to be a shark! Or as he said.. A shark playing soccer! It is hard to believe it is almost Halloween again-- last year he was in PICU for Halloween so we are hoping for a much different celebration this year-
We have to be in NYC by Tuesday, October 7th for his 3 month scans-- I am not sure where our 90 days went but we have enjoyed each and every one of those days- "scanxiety"-- is my new word lately-- I am trying to not worry about the unknown and just live each day one day at a time!
We are still wrapping up from a very successful bake sale-- Thanks to all of you that came to support us-
The milestone walk is coming up soon-- NOV.15th! Please sign up to walk on our team-- I have not met my goal of 100 people yet! We also need folks to get involved in other ways-- I know so many things are going on with the world right now but there are also tons of kids fighting this awful fight right now too-- We need more teams-- think of a group you are in and do a team-- I know Union County schools are trying to get teams formed-- I also know a mayor is getting a team started---
I will update more when I know our schedule for going to NY-- I am waiting to see if we can get on a corporate angel flight--
2 comments:
Love the shark costume! I'm so impressed with the amount you raised by your bake sale, way to go! We'll be looking forward to good scan results.
Stacy Sparks
GRACE,
HAPPY BIRTHDAY. I REMEMBER WHEN YOUR MOM AND DAD WERE EXPECTING YOU. WE WERE ALL SO EXCITED. HAVE A GREAT DAY.
GRIER,LOVE THE COSTUME. IT IS YOU.
HAYES,HOPE YOU ARE WELL. GRIER TALKS ABOUT YOU ALL THE TIME AT SCHOOL.
AMY AND JEFF-IN MY PRAYERS ALWAYS.LOTS OF LOVE,MARY ELLEN
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