Wednesday, August 4, 2010

A HOLDING PATTERN-

Grier counts went up a tiny bit today.... tiny... is the key word! His ANC was close to the 750 minimum to start chemo--- it was a whopping 702... His hemoglobin is still not stellar... 8.3-- BUT he does have some platelets--222!  I asked to start chemo today and got the ok since he was so close.... but then came the conversation of the logistics--- The infusion is an hour each day for 5 days and he takes a couple of pills too.... but since we would be doing it on Saturday and Sunday he would have to go to the hospital and be "admitted" for the infusion.... chemo orders can not be filled until he is on the floor and then the "in house" pharmacy would begin to work on it.. ( and the SLOW train would bring it up) ~(LOTS of WAITING...) I was told to expect 6-8 hours for what would normally be a 1 hour infusion.... and I said... NO~ That is  just ridiculous to ask him to sit up there for two days.... for 2 hours of medicine!!!  Crazy I know-- Half the time I am B&*tching that he has to have chemo and now I am because we have to keep waiting---- tired of the HOLDING PATTERN.... I want to make some plans... and actually do them and not think all the time ahhh, maybe we could have gone on vacation, moved, visited friends... etc.. WHATEVER~ basically someone else's normal life....

so... we got the ok to go to Target.... clearly not my favorite task but we are going to try to start Grier on an antibiotic in hopes to prevent the diarrhea... the prescription was faxed to target and we went to get it-- after several attempts and many phone calls... the fax finally made it and they said they don't carry that drug!  I had to get back on the phone and have it faxed to the hospital pharmacy and they are going to order it for him.  Now that we are not starting until Monday it will be ok because you have to start this drug a few days before chemo.  Grier on the other hand was thrilled to go to Target-- he has not been in almost 29 days... yes I know ~because it was before the last round of chemo-- and he was waiting for his counts to be higher!!   Yesterday, he said a million times how it was not fair that his counts were low and he could not go anywhere--  and today he was actually making up a song about his counts being high enough.... crazy!!!

Other than being on a holding pattern everything else is going OK.... Grier's looks have changed a lot... I thought he was just pale at first and he is.... but he has also lost eyebrows and eye lashes..... those make a huge difference in your looks.... I was hoping to see some new hair growth soon... but none so far... not that it bothers him.... if I only had a dollar for every time someone says something STUPID about his "haircut"-- and it always happens at the CMC elevator-- really folks... a filter would be nice... He does not have the "same haircut" as the bald man implied today.... :)

We are going to make the best of the weekend-- enjoy everyone home for awhile and try to start chemo on Monday---  

1 comment:

Anonymous said...

Always keeping sweet Grier and your entire family in my prayers.

Laura Black
Greenville, SC

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's