Tuesday, April 12, 2011

No change

Well.... His counts did not move at all. I would have lost a bet if I would have made one.. Especially since we doubled his neupogen last night. His platelet count was 10... usually they give a transfusion for 21 or below.. So he got platelets today.

The rest of the day was spent visiting... We had a busy day with visitors and it made the day fly by. He even had a surprise visit from his teacher and principal! He had a good time showing everyone his collection of legos he has made up here.. He also gave some rides on the hospital bed, played some cards, played a few games of horse and drove his remote control car around the room.

Nothing else new to report.. We have settled into a routine here.. Not ideal but it is working. Hayes and Grace have stayed on their schedule and that is always my goal.. I like to keep them as normal as possible... I am not getting to see them too much since I have only been home for maybe an hour each day -- yes, I am getting tired.. I have been asked how people can help and I just don't know yet. I am just taking each day and being as flexible as I can be. It is frustrating to be here but we don't have control over his count recovery... So we are making the best of it. As crazy as it sounds.. Grier and I manage very well as roommates in a small room with constant interruptions....

I am still hoping for a discharge tomorrow.. We just need to get through tonight and see what the lab results say in the morning...
Goodnight from the 11th floor at LCH..
Sign My Guestbook

3 comments:

Anonymous said...

Amy, Your blog is wonderful as are you. I am so proud of you. My thoughts are with you all. Too bad I did not know to send Grier's class a postcard last month. I will try to find one with a Florida Gator!

Anonymous said...

Amy, Your blog is wonderful as are you. I am so proud of you. My thoughts are with you all. Too bad I did not know to send Grier's class a postcard last month. I will try to find one with a Florida Gator!

Anonymous said...

Christenbury family!
We are keeping up with your blogs. Thanks for keeping us posted.
Know that Spring Break is fast approaching. Hope that you get to enjoy it.
Happy Easter.
You are in our prayers.
John and Dee Braswell
P.S. GO TIGERS!☺!

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's