Thursday, April 7, 2011

Wednesday was a pretty low-key do nothing day..... Grier didn't have a lot of energy and was NOT eating or drinking much at all... I was just hoping we were going to make our clinic appt. on Thursday morning.... BUT around 1am he spiked a fever... and Grier and I left for Hotel LCH... a fever and no immune system is nothing to fool around with so they told us to come in... and I know it means for a few days at the least.  As soon as we arrived... the process we know all too well started... port access.. blood cultures.. and hooked up to IV antibiotics... He was a very good sport and just rolled with it... finally going back to sleep at 3am! 

This morning I left around 7:30-- to go home and shower and go to Grace's school for her wax museum presentation... and I came back to LCH and Jeff went to work... Grier needed platelets so they gave him a premed of benadryl and tylenol and he was napping most of the afternoon... still not eating and I have been trying to get him to drink... he was a little dehydrated.  He also has been busy building legos.. and making blood soup... 

I am sure he will need a blood transfusion tomorrow... he looks very pale to me and the energy level is just not what I am used to with him.  I am not sure we will be discharged for the weekend...  

Hopefully he will perk up and start eating...  
Just par for the course right now-- sucks... but this is to be expected with this dose of chemo. 
 

1 comment:

Nana to 3 said...

My heart hurts for your precious little boy! I pray his appetite and thirst return very soon. My church and I continue to pray for Grier and your family as we have done since we learned of his illness when he was 2. Our God is a God of miracles and we are praying for one for Grier.

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's