We had an appt. today and his counts are slowly coming back--- the good news is that he did not need any blood products.
We have decided that we want to go to Sloan Kettering in NYC. There is a surgeon there that has lots of experience with Neuroblastoma and is well known in his field-- He is very meticulous and that is what Grier needs! So, now we wait to hear when we can go-- hopefully soon ( within the week) and get this next step behind us and get back to CLT as soon as possible to get back to our "new normal"-
As soon as we know when we can go we can make plans to get there and hopefully get a reservation at the Ronald McDonald house-- So, a little more waiting is in store this week-- I hope to update with details very soon-
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
18 comments:
Hi Amy,
Glad to hear you are going to N.Y. It is a great hospital. I have family in the city ,please let me know if you need anything. I know they would be happy to help any way they can. Keep me posted and I will be in touch with you.
Now we just need to pray a little harder,if that is possible.
As always you are in our hearts and our prayers.
The Paine's
Hello Christenbury Family!
Looks like Mary Ellen beat me to the punch again!
I am so glad to hear that you have finalized your plan on where you're headed. We're praying that your rsvn at RMcD house moves on quickly so you can begin this next excursion and as you said "put it behind you." I know you are ready to "move on," get there and get back!
Everyone here in Charlotte will be praying up a storm from now until the end of a successful surgery that Grier will be as comfortable as possible and that everything will proceed without incident, both here and there!
Please call if you need any help with ANYTHING! I am great at carpooling and directions and would be happy to help in any way. If you need someone to set up dinners/gift cards while you're away, I'll be happy to. Please call on your friends...we are all happy to help out in the largest or smallest way!
Lots of Love and Tons of Prayers...
Dina
Amy,
I am also glad to hear Sloan Kettering will be able to care for Grier. They are the best. A friend of our family is on the board of the Ronald McDonald House (I used to babysit their kids!)...if you know the date of arrival or they need a "nudge" to make things happen, let me know and we'll do what we can (madtom@bellsouth.net or at First Pres) Please don't hesitate,
Madeline Sullivan-Drake
Sounds like a good decision from what everyone has already written about Sloan Kettering -- we want only the best for Grier and your family! Hope things will move along quickly now that you have made the decision on location and doc. The sooner you go, the sooner you can get back home! Know that Grace and Hayes will be loved and taken care of while you're gone -- let me know if I can do anything. I'll be glad to check on them at ETES during the day!
Love and prayers, as always,
Betty G
Dear Amy and Jeff,
Great news on your decision! Sloan-Kettering is a fantastic facility and we will keep our fingers crossed that they will be able to schedule Grier for surgery in short order. Like everyone else, we are ready and willing to help right here at home or any way we can in NYC. We, too, have family and very good friends in the city that would be delighted to do anything for you and your family. We love you guys and missed you at Covenant Connection tonight. Our thoughts and prayers are with you!
Love,
Nancy, Ralph and the girls
Hey there Amy,
I was at Covenant Connection tonight at the church and upon leaving thought, "It just wasn't the same without the Christenbury family here." We miss you all and are praying for your family and especially for your upcoming trip to NY.
I pray that God will guide the hands of Grier's surgeon and that healing will take place. I pray that your family will continue to find strength, courage and peace. I so trust in our Father and I know that He hears my words for your precious son.
I pray and I pray and I pray.
GO GRIER GO!!!
Love
Anne
So glad that you will soon be moving to the next step in New York. Our prayers continue. Love, Nancy and Roger.
Amy -
Matthew and I (and the girls) have been praying for you all daily and will continue to pray for you during your trip to NYC. Stay strong during this time, we will be praying that God will be right beside you each step of the way.
Love,
Shannon & Matthew Deitz
YEAH!!
I am so thrilled to hear about this next step and know you are thrilled to have a working plan in action!
I know this journey has been extremely hard on all of you. I have been praying that God would lead you all to the perfect surgeon and will continue to pray that everything runs smoothly and easily for all 5 of you!
Much love!
Hannah and family
Glad to know you've found a good surgeon and a good place to go. We'll pray that all the details get handled quickly and effectively!
Alice, John, Grace and Rachel Arwood
Amy & Jeff,
Sloan Kettering is a great hospital! A friend of ours took her teenage daughter there for her cancer treatments. We will be praying for you all.
Amy,
I'm so glad you have decided where to go and I hope the details fall into place. I've been praying for you all on making this decision. I know they will take good care of sweet Grier and I'll keep looking for you updates. We think of him everyday! Take care,
Stacy Sparks
Hi Amy,
I have been praying for you all. Glad to hear you are going to NY. Let me know if there is anything I can do to help.I send my love to you all.
Beckie Ennis
Hey - We are praying that the wait to be scheduled will be short and that you will be able to come back from NYC very soon. We will be praying for you all and the surgeon. Love, The Steffens
Amy and Jeff,
We are thrilled to hear that Grier will be going to Sloan Kettering to be with such a phenomenal surgeon. We hope and pray the wait is short and that plans will fall into place smoothly. We will be praying extra hard for Grier, his surgeon and your family.
We love you,
Troy, Ben, Sara Kathryn and Woods
Can't wait for Grier to have this big step in this journey behind him (and you). I would do anything for Hayes and Grace .... let me know. Have you in my thoughts and prayers every day.
Go, Grier, go!!
Love,
Mrs. D.
Amy & Jeff,
We are glad that you have found the perfect place to help Grier. I am so glad you found a surgeon that specializes in neuroblastoma. I hope you can go soon, so you can be back home as quickly as possible. We know this will be hard on all of you.
Know that we think of you all every day. Every store we go in, Nolan picks up something he wants to buy Grier. Grier's whole room would be filled up by now :). But, Nolan does have a card and a little something for him, if you post an address in NYC that we can mail it to. Please let us know if there is anything at all we can do. We will continue to pray for you all every day- and especially for Grier and that all the hands that touch him will be God's healing hands.
GO GRIER GO!!!!!!!!!!!!!!!!!!
Lots of Love,
Jennifer & Jeff Hatley
We pray for you, Amy and Jeff and the kids, w/ this move, knowing how hard it is to leave your network of family and friends. God Bless you all.
Netha and all
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