Wednesday, October 28, 2009






We got released from the hospital on Monday Night--- after a quick recheck of his counts they went from .7 to 2.0--- so they let us go home to sleep in our own beds!! Tuesday we just hung out at home and regrouped--- !! I also made flight plans.. Ronald McDonald reservations and worked on our schedule for NYC--- I begged them to change the original date-- and you guys that know Sloan- know that getting anesthesia lined up is hard-- especially last minute... so when I asked her to see if she could change our days I was a little nervous she would just laugh at me.. but she said she would try and she did-- Since she was able to do that I can say we will be at the CureSearch Walk on Saturday-- :)

DAY 17.... that is what today is called--- it is 17 days since the first day of chemo of round two!! And it was a good day... we went to the clinic today and did the usual check up and a blood test-- his counts have recovered nicely and we did the last shot tonight--- I say LAST... but I really mean last for NOW--- :( Tomorrow we go to LCH for a Head and Spine MRI--- it will be LONG-- but he will be asleep and recover in the recovery room after he is done-- I hope we are home by 4 or 5-- Grier has asked a ton of questions today about MRI's so I am positive he is ready--- he may even tell them how it is done tomorrow--- On Friday, we will go back to the clinic and have his blood counts checked again--- just to make sure all counts are OK before we head to NYC on Monday afternoon- When we get to NYC he will have an CT on Tuesday, MIBG injection and on Wednesday MIBG and Bone Marrow test-- We are going to fly home Wednesday night- It will be a quick trip but I know we will be there longer in the near future.

Enjoys the new pictures.... other than the normal craziness all is good at our house right now!! Even the dog was a little pampered yesterday by the mobile groomer!! I told a friend I was jealous my Dog was getting a facial and not me!!! But Tucker sure does smell better :) Grier feels good--- he is eating better without the help of drugs and very active-- he told me today as he was playing soccer that he was ready to get on the soccer field!! Thanks for all the notes and meals -- they have been very helpful and are very much appreciated!!!







4 comments:

Kimberly said...

Hi Amy.
So glad you and Grier are home! Tucker and Grier look very handsome in the pictures. Grace looks beautiful! Thumbs up next week in NYC. Hope to see you next saturday! Kim

Anonymous said...

Love the new pics! I miss seeing H&G every day -- know they are both happy in their new schools and on the honor rolls again! I will be thinking of you and Grier tomorrow during the long day and hoping everything will go as smoothly as possible.

Brian will be in town for a wedding the weekend of CureSearch so I will miss it this year. Will certainly be thinking of everyone on Saturday. Go Grier Go!

Love to you all,
Betty G

Ashley Pollock said...

It was a beautiful day to enjoy being together -- however briefly. These are not easy days.

So often those in the medical profession will cite their own early childhood experience with terrible diseases as having inspired them. It looks like you have a future doctor on your hands!

May NYC offer the answers you need to regain your confidence. Love to that sweetest of boys and all that surround him!

Ashley.

Anonymous said...

The pictures are great, Grace and Grier look like they are having a grand time in the front yard. I'll be think of you guys next week and sending some thumbs up!!!

Netha and all

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's