Wednesday????  How did that happen?  Monday night was as long as I had hoped it NOT to be-- They started Grier's chemo at 6:30pm--- so he had to pee hourly until 2:30am~  He was pretty funny until midnight when I was so sleepy and he was asking me a ton of questions about rolly pollies!  We had just watched Sid the Science Guy on PBS--  The 1:30 and 2:30 pee collections were a little hard-- he was in deep sleep and when I would try to stand him up his legs were like jello-- but we made it through- and slept until 7:30 before our day started again-- 

Yesterday, Grier felt really good in the morning and most of the afternoon-- we went to the playroom to play the wii and he played a few games of trouble--- We had some visitors -- And my mom came to stay with Grier a little so I could go home and be with Grace and Hayes-- Late afternoon came and so did some side effects from the chemo-- he felt pretty crummy-- Jeff and I did the switch and by 9pm Grier was perking up a little-- not eating but wanting to play with his new toy! We had to do the hourly pee collection again last night but this time it was a little longer because I could not get him awake enough to go at 2:30-- so we waited another 45 minutes and he went and he is done with Cytoxin for this round!  He woke up around 8am and is not feeling the best-- no appetite and just hanging out watching TV-- looks like that is not a bad idea from what the weather looks like  from the 11th floor window-- 

He has to finish the infusion that started around 6 last night and runs for 24 hours-- and he will get the 3rd dose of irenotecan today around 3-- then if all goes well---- we can go home to sleep in our own beds tonight--- We have to finish the other infusions on Thursday and Friday in the clinic this week- 

Please see this note from Jeanna--- 

Friends wanting to provide a meal click on Food Tidings under the account Go Grier Go! Amy finally agreed it would be very helpful for her family! Thanks http://www.foodtidings.com/SignUp.aspx?ScheduleGuid=45f1fdb7-57c5-40f3-b006-a284cb80fffb

Hopefully the next update will be from home --  I can not believe we are almost finished with the two rounds of chemo and almost ready to go back to NYC again for scans-- the weeks have flown by -- Time flies even when it is not fun!