Carol came and did labs at home this morning-- The clinic called around lunch and said he needed platelets and blood-- so we needed to head over to the NEW hospital-- We did not have to go to clinic because this is a long process and they would close before we were done-- So, we packed up and went over to LCH--- It is so nice inside!!! The room we are in is great and just when I said we were just here for the afternoon-- they did his vitals-- and he is 100.3 for his temp! So, we are waiting to see what happens before we start all the blood products! Hopefully it goes down and not up and we can get started-- but he is nutrapenic and he always has a 50-60% chance of getting a fever-- I do know that all too well!! We are hanging out watching videos and just waiting for the orders!! AHH! Another flexible day in the Christenbury Household-- Hopefully my next update will be that we are home for the weekend... decorating for Christmas, shopping, going to basketball & lessons and carols-- :)
Update as of 8pm-- I am home with H&G--- Jeff is at LCH with Grier waiting on the transfusion to finish-- It should be done at 10:15-- and then they will come home-- UNLESS something happens between now and then-- The fever he had this afternoon went away on its own-- so I hope it does not come back-! Because if it does we will be in for a long stay because he is nutrapenic! The room we are in is great-- Grier is telling everyone how nice it is-- We are in one of the rooms with the lights outside the windows-- and we played "I spy" from the 11th (oncology) floor looking outside! The nasty chair-bed is a distant memory-- they have these "futon" like chairs-- that transform into a bed-- Today Grier was on the futon all day-- I think he thought if he got in the hospital bed that it meant he was staying! The lobby is really pretty-- lots of crystals hanging from the ceiling-- And the art work all around is wonderful-- all made by kids in the community!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Friday, December 7, 2007
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
3 comments:
I hope your next update IS that you are home also...doing all that you mentioned! Hopeful that Grier will not feel bad along with the fever. Could be a "mystery" fever...we can hope:)
Enjoy this quiet time with him and keep busy making lists while you can since he can not read...this won't last long.
Thinking of you all...love,
Dina
Like Dina, I hope you are soon home (maybe even by now!). At least you got to see the NEW LCH and experience it first-hand. Hope it is wonderful and the rooms are great with comfortable recliners/beds for parents!
Here's to a great weekend -- decorating, enjoying the season and being together!
Love to you tonight,
Betty G
I am hoping Grier and Jeff can be home soon and you can all sleep well in your own home. I will pray for lots of fun and decorating this weekend.
Glad to hear they have futons so when necessary maybe you can get a good nights rest.
You will be in our hearts and prayers.
Love,
The Paine's
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