I do love Fridays of 3F8 week--- when we finish a week of treatment you feel so good-- Grier had pain today and was able to do his breathing exercises ( like Lamaze!!) during most of it-- he did have his 2 rescues of Dilaudid and it seemed to take the edge off--- Monday was the longest and most intense and then the rest of the week seemed to be the same everyday--- I am glad we did not have any surprises with blood pressure and O2 levels-- We also had a great roommate-- They called our room "The Southerners!"-- which is fine with me because it made time go by faster as we waited for the boys to wake up-- He is around Grier's age ( 6 months younger) and lives in Charlotte too-- we had a favorite nurse in common-- Dawn!! He does not go to CMC but had her with home health--
The general consensus from the team is that he looks good--- and he does -- I can not wait for him to get back home and start feeling good again-- This week takes a lot out of him! We will have to watch for withdrawal symptoms from Dilaudid-- His body is so used to having it for a week-- it can have symptoms...like fever, sweats, chills, mood swings when we stop cold turkey-- NICE huh?
So-- now it is time to pack and get ready to board our corporate angel flight early tomorrow morning-- We will be leaving extra early to avoid all the "POPE" traffic. He is in our "hood" today and tomorrow!!--- Hopefully nothing will stop us from getting there-- not even the POPE!!! We should be home in time for Opening Day Ceremonies for Dilworth--- and then we will get to see Steel-Fab play some baseball-- Somehow we lucked out not missing Grace's game again--- she does not play until Sunday!!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Friday, April 18, 2008
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
3 comments:
Amy,
So happy you are headed home. I am glad the week is behind you all. Hopefully you are almost home. Thanks for continuing to share we think of you all often and pray for you all!! Go Grier Go!!!!
Stephanie G.
Amy,
So glad this week is now a "thing of the past!" So hopeful you were able to get home today. Looking forward to a playdate in the very near future!
Thinking of you as you re-enter life in Charlotte. Praying that Grier has a relatively easy time going off Diluadid and that you all don't have to deal with withdrawal symptoms at all.
Tons of love and prayers for you...
Dina
Hope the flight home went well! We have been thinking of you and praying for you to have a good week! I know you all are looking forward to getting back into a sense of routine and normalcy and we look forward to seeing you at the soccer field.
We pray that the symptoms from not having Diluadid will be mild.
Daphne, Killian, Carter, Shields and Mac
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