Today is going much better--- We got to MSKCC at (7!!... why I am still not sure) since we did not really do anything until 8:20! Oh well- Grier did fine as usual.. pushing the white medicine and then waking up for a brief second after they were done-- he fell back asleep and had a really good nap-- And he is in a pretty good mood today--
We stayed in our room while he went "commando" so we could collect urine for 4 hours!! FUN!!!
After that he went to the playroom for awhile--- and now he is back and ready to go to dinner---
He has done really well taking this NASTY medicine--- it is 7 drops of "iodine" to protect his thyroid from the MIBG injection---They are extremely bitter--- but has gotten them down for 2 days and we have one dose left--- his new trick is to suck on a lollipop before and after!! Tomorrow he will have to drink the contrast for the CT --- AHHH-- so many things to get done just to get scanned!!
And the final news of the day is that he is HAMA negative--- meaning he will do 3F8 again starting Monday, April 14th--- we need to be back in NYC on the 13th-- assuming all these scan results are OK-
So-- we are busy trying to find a flight home--- Corporate Angel has nothing right now so we must again book a last second flight on USAirways--- Oh well--- at least we will be home for the weekend--
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
8 comments:
Steel Fab awaits your arrival! Glad he had a good day. We missed you guys at Monday night's game...never seen a scoreboard for Steel Fab look like that one (16-0)!!!! Tell Grier hello from the Graysons.
See you soon.
Lynn,Brent and the boys
What awesome news about the HAMA test! I know that relieves a little bit of your worries. Hopefully you will get your flight figured out, and I will get to see you guys soon before you head back on the 13th!
Trisha
FANTASTIC!! Grier is awesome. Somehow he just knows what needs to be done in order to get home and he's doing everything in his power to make that happen. Hooray for the HAMA result and the continued 3f8 therapy! Praying for great scan results!!!!! Glad you'll be able to come home for Spring Break and enjoy a bit more "down time!"
Hope all goes well tomorrow with the iodine and other "NASTY" stuff that sweet Grier has to endure. Enjoy AI tonight and hope the newest neighbors are slowing down a bit.
Tons of love & prayers...
Dina
Glad to hear it was a better day. So happy he is HAMA negative. We pray for all clean scans and some rest for all of you tonight.
Lots of Love,
The Paine's
We are delighted to hear that the HAMA is negative. GO GRIER GO!!!
Love, Nancy Williams
Hi Amy, Jeff and Grier,
So glad to hear the 3F8 treatment can happen soon. That is great news. We pray that the scan will be clear again. Good luck getting a flight back home. Glad you get to enjoy an "unscheduled" week at home as well...
love Isabel
I was happy to read that you all had a good day with good test results. Every good step forward is a triumph for all of you and one that is deserved way beyond measure.
As just one member of your cheering section, I wish you a restful night, more good reports and a smooth trip home soon.
Nancy B.
I believe all of our prayers were answered last night -- for Grier, you, and Jeff to have a better day today, that Grier would be HAMA free, that 3f8 could continue soon, and that you would be home soon -- just in time for spring break!
Grier -- always a trooper and able to weather the worst! Oh yeah, his parents -- always troopers and able to weather the worst! You guys make a great team!
Hope you find exactly the flight you need to get home on Friday. Sleep tight and hopefully quietly. Remind the neighbors that "Early to bed..."
Love and prayers tonight,
Betty G
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