We have survived a busy week at home with NO doctor's appointments---! We were very busy with baseball and soccer games last weekend and more to come this weekend--
The most exciting news of the week is that Grier went back to First Pres Preschool!!! We have been visiting for a couple of weeks on the playground but not on a regular basis due to our NY schedule. Since we have a three week break in between the next NY visit this time-- I decided it was time to try-- It has gone OK--- Grier is very excited to go as long as I do not leave--!! On Tuesday he had a short visit on the playground and on Thursday and Friday we went from start to finish and had a fun time playing in the classroom and going outside and then finishing with lunch! The kids and teachers were great-- welcoming both of us!! He did great and I tried to leave the room once but it was short lived--- but I will keep trying-- With the year he had I have to keep reminding myself that he will take longer to adjust to his peers and this new schedule without me-- So, we will press on trying to get him adjusted to a school routine again-- hopefully before summer comes! I know that I could not have asked for a better program for him to be in-- wonderful teachers, directors and families-- Thanks for welcoming us back!
He is almost half-way done with this cycle of accutane!! You can already see the skin starting to peel and break-down and of course the mood swings are in full force-- I am trying to get Hayes and Grace to give him a break but they do not understand-- It is sibling rivalry in full force at our house!
Our next appointment will be on Thursday-- he will get his port accessed and they will draw blood for the HAMA test-- I am praying he is HAMA negative one more time-- so we can get four rounds of 3F8- I do not talk about percentages a lot but they say at least 4 rounds -- with 6-8 being better so that their body can learn to fight of NB on its own-- we will not know until late Tuesday, May 6th-
That is it for now-- check the reminder from Kerri about T's--
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
8 comments:
Amy,
What a week...no doctor appointments...hooray! So glad to have been at FP to welcome you all back. Glad this week went well enough for you all to try on a "routine." Hoping it will continue to go well and that Grier will feel well enough to release the strings that have tied you all together for the last year +.
Hope you all have a great weekend of beautiful weather and fun games!
Lots of love...
Dina
I was so happy to get to see you and talk to you. Grier looked so good. I am sure once he settles in he will be fine with school. As you said he and all of you have had so much this past year.
I am excited for Grace and her soccer. After we talked I thought about how Elizabeth's best memories were on that soccer field. Just think if it was not for you she never would have been there. Thank you.
We think and pray for you everyday. Please know you are always so very close to our hearts.
Love to you all,
Mary Ellen
What a great Mom you are to go to preschool with Grier ! I'm glad that you're there to help him feel secure and comfortable as he gets a chance to be a part of school again. Hopefully it won't be long until he's off and running without you.
Michele
So glad to see you at Extravaganza and be able to chat for more than a couple minutes! Grier looks wonderful and I was glad the playground suited him -- we love that playground! I'm also happy that he was able to get to preschool last week -- it's like starting all over again, so expect the clinging for awhile. Go with his flow and he'll let you go soon enough! After all, he hasn't been without you close by for over 365 days!! It will take time to separate.
Hope your next two weeks go very well with only routine doctor visits. I'll pray for no HAMA this week when he gets checked.
Thanks for your blogs -- I have lots of people at school asking about Grier, so I always have up-t-date info to tell them
Love and continued prayers,
Betty G
Amy:
Just thrilled to hear that Grier is back in preschool ... even if he needs mom as a side kick. He is such a brave little warrior!! He is able to be that way because of you, Jeff and the SuperSibs. I will pray that he is HAMA neg so that he can begin another round of treatment.
Congrats to Hayes ....... a home run ..... WOW!! I missed seeing them both this week due to a stomach bug . ..UGH!!!
You are in my thoughts and prayers each day.
Love,
Mrs. D.
Amy:
Just thrilled to hear that Grier is back in preschool ... even if he needs mom as a side kick. He is such a brave little warrior!! He is able to be that way because of you, Jeff and the SuperSibs. I will pray that he is HAMA neg so that he can begin another round of treatment.
Congrats to Hayes ....... a home run ..... WOW!! I missed seeing them both this week due to a stomach bug . ..UGH!!!
You are in my thoughts and prayers each day.
Love,
Mrs. D.
Glad you are enjoying your time at home and so glad Grier is having fun at First Pres even if you don't get to leave. Hoping for good results from the hama.
Stacy Sparks
I love those pictures. Just know we think and pray for you everyday.
Praying Grier is HAMA free.
Lots of Love,
The Paine's
Post a Comment