Day 3 of ICE

These last three days have felt like a month... I can not believe this time last week we were almost home from NYC----and now we are back in the same room we started in last week when he had the fever.  Yes~ we did have a room change today... not at my request but they said we had to move because the other room was an observation room.... So, late this afternoon we packed our stuff and moved to room 1-

Today started out a little slow.  Grier slept late again.  The nights wear him out... we have to wake him a few times to go to the bathroom and believe it or not he is getting so much post-chemo hydration that the sheets have to be changed too.  We were lucky to have the great nurse we had Monday again last night... she makes all those wake up calls as easy as she can for both of us.  She was so on top of everything that the pump did not even beep .... and that is HUGE in my book....

Grier has now finished 3 days of ICE--- actually today it was just the I & E--- it will be the same for the next 2 days.  He is getting sick late in the infusion --- benedryl through his IV works but it knocks him out so finding the right balance is what we are trying to do--- He has not eaten much if anything since Monday--- not even had much to drink.  One of the side effects from the caroplatin is that is makes things taste like metal... so I am sure that is an issue and the nausea.

He had more visitors today--- but I could not talk him into getting out of bed.  He kept asking how many more days until he could go home?? And he asked if today was a school day?

so... besides... napping, not eating, and wanting to get back to normal we are hanging in here up on the 11th floor--- trying to make this as normal for him... and apparently everyone thinks I make it look easy... but there is nothing easy about it....  I am missing being at home too--- it seems like forever...  I did go home and take a shower but it is not the same---

Got to go wake him up... time for a urine sample... and then I am going to bed... we are sharing the bed this  week... which is fine since I am sleeping with one hand on the pink puke bucket so I can help him if he gets sick in the night.