a stay at LCH instead of home----

My updates are more regular now.... ugh...

After I updated last night we had an unexpected visit to the hospital..... Grier had a fever when he got off the plane last night... I was hoping it was just under the magic number that makes me call the doctor.  When we walked in the door at home I took his temp and he was 100.1--- so I was watching him.  I knew he had "normal counts" meaning he was not immune suppressed so I was hoping it would be a quick antibiotic infusion just in case situation.... He went to bed and the fever continued to climb... I made the call I hate making and was told to go to Levine.... It was around 12:30a-- I called NYC just to get his most recent counts ---arrived at the hospital a little before 1am ----- and the fun started... poor little guy was burning up--- the poking and prodding and all the stupid questions that I have answered about a hundred times since we started this journey were asked.... the port was accessed... not the best especially since he was just de-accessed in NYC earlier that day-- a portable chest x-ray was taken at 3:30a--- and the fun continued until around 6a--- and he was sleeping soundly....

They kept him for observation today and thankfully has not had a fever since the early hours... he had another dose of the antibiotic before he was discharged home around 5:30---

He is perking up--- he was so mad to be at the doctor again..... and he shut down.... But he is up and moving and eating... and playing... even had a visit from a friend ---

I am counting down until I can say Goodnight to the threesome..... a little tired.... I guess last night was a dry run for what we have coming in the next few weeks---