Real Quick.... Grier had a pretty good day... actually asked for Chic fil a nuggets.... and he wanted 8--- I laughed out loud... oops.. but since he had only had a crumb I was thought he was trying to be funny.... He ate 2--- not bad... had a bite of mashed potatoes and several drinks... including "shaska" -- he told me it tastes like root beer... not coke... ( it says COLA!!!)
He played lots of go-fish... and his hot wheels game --
The only bad part was accessing the port... i know it is sore because this is the 4th week in a row it has been accessed.... -- it took two attempts which is traumatic..... then after it was done it was time for the shot to increase his White Blood count.... He likes me to give that now even if we are in the hospital... I asked for a smaller needle because the last two days the needle seemed bigger than what I was used to--- so our nurse made that happen....
Other than the normal ... today has been the same. He has only gotten sick one time... and his hair is falling out quickly,,,, he said his head hurts.... it must be tender... He seems ok with it right now.. I actually asked Hayes if he wanted to shave his head too.... Grier thought that was a cool idea.... Hayes not so much... then I said .. Do you want me to shave my head... and he said NO-- whew.... not sure what I would have done if he said yes.... I guess gone to see Tonya.... :) It is just hair....
A week from tomorrow he will turn six... I hope we are not in the hospital..... I also want him to feel great so he can enjoy his present that he has wanted for a long time..... no it is NOT a puppy ..... I am not that crazy!!!
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
1 comment:
Ok I'm breaking rules and wallowing in a little pity (not long term because that will be fine, I know it, but short term...) -- because every once in a while it just gets crazy and too much and it doesn't mean that you won't get through it and be stronger for it but yuck yuck yuck. I hate the daily maneuverings and discomfort you all must endure. And very good for you asking for the smaller needle!
Ok now that said, summer is the perfect time for a buzz cut -- all ages, all genders. Chik-fil-a really does scratch the itch. And soon I hope Grier will be up to plotting his birthday cake and party.
And better yet, may he enjoy them at home!
xxoo.
Ashley.
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