I am doing this blog update without emotion.... without much thought so I can bring people up to speed and everyone is on the same page.... (really so I am not asked in the next few days how scans went.....)

A new spot was found on Grier's MIBG scan-- it is on his left hip... not soft tissue disease.... it was only on the MIBG not on the CT scan.  Dr. K looked surprised... or maybe I was reading into his expression because I was surprised... I had a feeling.... things were going south when I got the call to meet with the Doctor before I left... so that was the first movement my stomach dropped.... I listened and questioned him as he showed me the SPOT on the hip--- He suggests using a chemo called ICE ( IFosfamide , carboplatin, Etoposide)--- it is three very high dose chemo agents that are given over a five day period-- inpatient if done in Charlotte-- out patient if in NYC-- Grier's blood counts will drop quickly and stay down for a long time... transfusions are a must and most likely... a long nutrapenic (no immune system) hospital stay is almost certain...and with our luck a definate... and the curls will be gone... but hopefully the NB will be gone too---

Some of you saw my Facebook post today --as I was packing and getting ready for the airport... trying to hold it together for Grier....and I did for the most part. I had lots of support in NYC... thanks Gretchen... you know the right things to say because you know how it feels.... I did not get a chance to tell some friends because I was not going into it with Grier around.... sorry.... I know some could read it on my face....

Tomorrow I am scheduling a freak out moment when I am home while all are in school--- after that we are getting back to fight mode.... because that is what we do--- Monday will probably be the first day of chemo--