Thursday, May 20, 2010

Thursday..... what can I say except it was a long and quiet day for the most part.  Since we are pretty active during the early morning hours with pee samples... and last night we added nausea and vomiting to the mix... the days are running together... He had a rough night last night.. the benadryl that seemed to help the other nights was not working.... and we were almost going to add another medicine... but around 3 he seemed to settle down and relax and sleep... until he was messed with again around 5a and he had one of those "night terror" episodes.... It was not very long and it must happen during the deepest part of his sleep... especially when they wake him to do blood pressure and make him go to the bathroom. He was back to sleep very quickly -- they came in again at 6 then shift change at 7... 7:30.... 7:45 someone else came in to see if he wanted breakfast... 8:00-- and you get my point... this morning was crazy -  He slept until 9 and woke up for a few minutes... and was back to sleep and basically slept all day.... He did wake up around 3 for about a half an hour but was not chatty and if you know Grier you know that is not the norm for him... I kept asking him questions and he said nothing..... finally he squeaked out ... When are we going home???? I said in a couple of days... pretty vague answer --- after that he was asleep and chemo infusion started for the day.

I had a few visitors today.... that was fun to chat a little.... the room has been awfully quiet.
I came home to get a shower... have dinner with H & G... and I am going to head back for the night...

Thanks for everything( gifts, cards, notes, everything).... every time I come home there is something new.... dinners have been very helpful since I do not have to think about it at all....which is good since I am a little sleep deprived and basically running on adrenaline.  Looking forward to tomorrow and hearing the beep at the end of the last infusion.... no this is not the end of chemo for him-- just this week.... I hope they will let us go home .... he has not eaten since Tuesday.... so it will be interesting what they say about leaving.... I know he will do better out of the LCH resort.... Saturday can not get here fast enough....

1 comment:

Ashley Pollock said...

That sweet little voice asking about going home -- you know he is worn out. And with all the advancements you would think they would know how to consolidate the morning questions and nudges and changing of the guard. May you sleep long and soundly this weekend.

xo.
Ashley.

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

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Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's