Time to update...

Just wanted to write a quick update about our last week at home..... Grier has been busy with school and T-ball... he has finished his 5th (14 day cycle) of Accutane---- and is back into the swing of things.... We even had a trip to the clinic in Charlotte for a blood test.  It is HAMA time again... can you believe it??? I will probably hear something tomorrow.... if he is still negative we will be back in NYC for 3F8 the last week of CMS.... and Grier's birthday... one day at a time right???? There are a lot of if's right now--- so all those dates are penciled in and no plane tickets have been bought yet!

This Sunday, Grier and I will go to NYC for his quarterly check up--- he is ready... and I am ready... actually I have barely unpacked from a couple of weeks ago.... It will be the two of us this time and I keep telling myself that they can not tell me anything I have not heard before.... I know we are in good hands and these check ups help us catch things early..... yes.. I have been giving myself this talk a lot--- scanxiety is a crazy feeling... but after 3 years I am coping and finding peace in just living in the moment.  I feel like a lot of important things are riding on these results for the next three months.... but then again there always is something that we look forward to and scan results can either make it happen or make us take a detour.  We did just find out that we are flying on a gulfstream to Teeterboro, NJ---  I told Grier and he said YES... that is my favorite plane.. "the one with the couch"!  Thank you corporate angels and the bank that is donating the empty seats.... makes life a lot easier when flying solo and we can stay home a little longer on Mother's Day.  Next Monday will be pretty easy in the "oncology world"-- he will have to be accessed ( which involves lots of screaming) and after that he will have his normal check up.... later in the afternoon he will have his nuclear injection in preparation for the scan the following morning.... He will also have his CT the same day after the MIBG scan--- On Wednesday, he will have anesthesia for his MRI of the head and bone marrows.  We will fly home with USAirways that night.... Our plan is to be back at preschool Thursday and Friday..... and helping prepare for the Cookies for Kids Bake Sale on Saturday.

We will finish up this week with T-ball and beginner's day at the school he is going to next year.... I am sure I will have lots of pictures of that milestone....  Thanks for checking in--- I will update as I know things... but I am not taking my computer to NYC.. really no need... takes the Ronald forever to get me a password... and we will be home before that happens :)