Thursday..... what can I say except it was a long and quiet day for the most part. Since we are pretty active during the early morning hours with pee samples... and last night we added nausea and vomiting to the mix... the days are running together... He had a rough night last night.. the benadryl that seemed to help the other nights was not working.... and we were almost going to add another medicine... but around 3 he seemed to settle down and relax and sleep... until he was messed with again around 5a and he had one of those "night terror" episodes.... It was not very long and it must happen during the deepest part of his sleep... especially when they wake him to do blood pressure and make him go to the bathroom. He was back to sleep very quickly -- they came in again at 6 then shift change at 7... 7:30.... 7:45 someone else came in to see if he wanted breakfast... 8:00-- and you get my point... this morning was crazy - He slept until 9 and woke up for a few minutes... and was back to sleep and basically slept all day.... He did wake up around 3 for about a half an hour but was not chatty and if you know Grier you know that is not the norm for him... I kept asking him questions and he said nothing..... finally he squeaked out ... When are we going home???? I said in a couple of days... pretty vague answer --- after that he was asleep and chemo infusion started for the day.
I had a few visitors today.... that was fun to chat a little.... the room has been awfully quiet.
I came home to get a shower... have dinner with H & G... and I am going to head back for the night...
Thanks for everything( gifts, cards, notes, everything).... every time I come home there is something new.... dinners have been very helpful since I do not have to think about it at all....which is good since I am a little sleep deprived and basically running on adrenaline. Looking forward to tomorrow and hearing the beep at the end of the last infusion.... no this is not the end of chemo for him-- just this week.... I hope they will let us go home .... he has not eaten since Tuesday.... so it will be interesting what they say about leaving.... I know he will do better out of the LCH resort.... Saturday can not get here fast enough....
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Thursday, May 20, 2010
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
1 comment:
That sweet little voice asking about going home -- you know he is worn out. And with all the advancements you would think they would know how to consolidate the morning questions and nudges and changing of the guard. May you sleep long and soundly this weekend.
xo.
Ashley.
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