Cycle 1 -- DONE..... now on FEVER watch!

Oh my gosh-- I think the last three pictures I have take of Grier look the same-- but trust me they were taken on different days! That may give the biggest clue about how things are going around here- Friday we went to the clinic and it was very hard to calm him down and promise that we were not going to spend the night again-- I totally understand since when we went on Monday we were admitted from clinic-- but he was not buying it!! We saw the doctor and guess who did NOT have the flu--- ( seasonal or H1N1)--- GRIER!!! I felt a little like saying I told ya so--- but our doctor said it for me-- he did not think he did either- We did find out that his blood counts are falling quickly from the chemo-- so knowing that made me a little nervous-- because if he gets a fever it will be an automatic admission until his immune system recovers enough to leave and that my friends has no time line-- :( He received the last hour of irinotecan in the infusion room--- he told me he remembered that room-- he might...but who knows-- it is a nice open room with tons of windows and lots of things to do while he is getting chemo or blood transfusions- He played with a remote control car and drove it around trying to avoid tripping the nurses and played NASCAR 2002 on the PlayStation they had--- he was cracking me up as he tried to pick his driver and he was not understanding that this game was a 2002 version and we are in 2009 and some things have changed! After the beep he was de-accessed .. meaning the large needle was taken out of his chest so we could go home-- Not his favorite thing to do at all! We walked to Chick-fila and I ordered whatever he wanted in hopes that he would eat something--- It has been since Monday with not much going into his mouth-- and I will say he took a bite of a chicken nugget when we got home and the milkshake and soup were not even tried!! At this point he is calling the shots -- I just want him to eat so today we are trying a smoothie from Smoothie King and some muscle milk- ( we gave him muscle milk back in 2007 and I am trying to tell him it used to be his favorite and it gives you muscles like ball players--) He is asleep again so I will let you know how that goes! We did make it around the lake for the Festival in the Park-- and he has had a few surprises lately-- Yesterday he woke up and a mom from his class had dropped some cookies off and a note-- he grinned when I read the note and was so concerned that his friend was here while he was sleeping playing and he did not even know it! So as of right now we are on "fever watch"-- I should have a bag and ready to go just in case but have not barely unpacked the other bag! We are being more careful than we have been about hand washing and germs--- I know Hayes and Grace will be exposed to tons at school but we are doing our best to be safe at home- and WASH HANDS--- but 80% of the time you just get a fever because you have no immune system--- I am really hoping we fall into the 20% and skip that admission this time- The good news is that round one of chemo is behind us-- now we manage the awful side effects-- as soon as his body recovers we will start round two- He is having a hard time dealing with wearing a pull-up again-- but we keep telling him it is just in case of emergencies!! I think he is having some tingling on his head because it is very itchy--- I remember this the first time... and it was before his hair started to fall out--- that will be the next "big thing" Thanks for checking in-- we are surviving--- Grace turns 10 this week so we are celebrating that as well-- Amy ps-- Whomever sent me the flowers at home---- THANK YOU!!! It was quite a surprise--