Let me see if I can remember the last two days--- they have been very busy and I am going to try to be as positive as I can..... There was a bed crunch so they need to move Grier from the POU ( pediatric observation unit) ASAP--- i felt we were getting rushed out but they kept telling me he was doing well--- Well????? He did just have a major surgery-- not his tonsils out.... but a THORACOTOMY--- As soon as the shift change happened on Thursday morning it was very apparent we were headed to the inpatient floor--- as some of you know I dread that floor--- shared rooms and less supervision is not mu idea of resting and healing--- I pleaded with everyone that came in but basically they needed a room- Around 10-- guest services came to take Grier down to x-ray.... not on his bed but in a wheel chair-- or basically on my lap in a wheel chair--- the only problem was he had not been out of bed yet and that was his first time--- :(  He was in some pain but we kept pushing his pain pump as it would allow !  We got to xray on the 2nd floor and he had to walk a bit... ( first time again) to sit on a stool so he could have an xray--- He still had his chest tube in and his catheter and this was making moving around very difficult-- but he did what they asked and we went back upstairs--- then we were met by PT--- so he got off my lap and walked... or shuffled into the room-- he did have a gown on but his backside was showing because he still had a catheter and we were not able to put pants on yet! Then they did some "games"/ exercises before he could get back on the bed--- his hands were very swollen from the IVs that were put in for the surgery- they wanted him to write his name and he did but I still do not know how--- he cried the whole time and after seeing his hand today I can understand why-  The whole time PT was working on him his nurse was tweeking his IVs that were causing problems and his catheter that was not working-- there was too much going on fr his first time out of bed--  He finally got to rest some and had a few sips of Gatorade-- And soon after they were moving us to the floor-- We packed our stuff ( not much) and carefully picked him up with all his "things" hanging from him and put him in the stroller and wheeled over across the hall--- I was about done at that point and I am sure they could tell---  After all we were working on not much sleep and a lot of stress-- We walked into our room and it was a "corner room'  just like the tiny room that I have terrible memories of from Oct. 2007-- so as you could imagine I was holding back tears and really wanted to wheel him out of the hospital and run-- but we settled in and just sucked it up as we always do-  Jeff went back to the Ronald and I stayed--- Grier woke up a lot-- it was almost as if he was a newborn again-- his oxygen level would dip low when he was sleeping and that still had to be monitored like the night before-- but this time it was me doing it-- He had pain about every hour so we would press his "button" and he had night terrors again-- this was probably the worst....His IVs did not work during the night-- as well as the stpid catheter that was not working well as we left the POU-- not sure what time they worked on that-- Grier was over it-- Jeff came back in the early morning and we knew the goal was to get rid of the catheter and chest tube b/c it would make it easier for him to get up and move-- which is good for his lungs and to prevent complications.Both were out by 11 and then the IVs were not working--so that was being worked on by tons of people-- he had been screaming since the cath was taken out and the awful chest tube-- if you do not know what that is google it-- He had calmed down a bit and we were having him blow bubbles and we talked him into trying to use the bed urinal to pee so we could get him up and moving--- it hurts when a cath comes out because you are irritated and when he went it burned--- he then was shaking all over and I called the nurse--- then we called the nurse practioner because he was shaking uncontrollably-- well, they needed blood to run tests and those IVs were not working so after several people attempting to draw blood and missing they finally called someone from the day hospital-- and she was able to fix the IVs-- Grier was so upset that anytime anyone came in he started crying--- He then spiked a fever and it went away quickly.... and we let him rest!  PT kept coming by but after 2 hours of hell we told them to let him rest.... later the blood they took did not do so they needed more and the whole IV saga started again--- but after the first try.... we said.. stop!  Please call the girl who came from the IV room--- and they did -  Grier ended up losing all 3 IVs and they started a new one today but Connie fixed the problem-- He ate a little lunch.. grilled cheese and a smoothie ---Things looked a bit better than the early morning.  We got him some new pain medicine-- Dillaudid--and got him up and walking and it was like a different child.  He walked and stood up and did games like kicking and throwing for over an hour-- Hopefully we can get him out tomorrow if things stay the same as they have this afternoon -- no fevers are a must and he has to be mobile and not need oxygen while he sleeps-- Jeff stayed tonight so I could sleep some--  I hope when I go back in the morning I will hear he had a great night and is ready to get out of M9- That is it--- I have left out tons of things -- too tired to type them all-- Hopefully we will be  home on Tuesday or Wednesday--- we need to do one more procedure before we can leave NY-