WE can call this entry take "TWO" since you have to hold your breath and stand a certain way and do something else special ( which I have not figured out yet) to not get kicked off the wi-fi at Levine!!!! My cell does not work either so it is really driving me crazy- Last night was not at all what I had hoped for our first time back--- I asked several times about the timing before we made the Monday appointment to start chemo and was assured that the orders were written and everything would be ready after our brief clinic visit--- Well.... experience had me doubt that but I had no idea we would have been so off--- Basically, we waited around all day.... lab lost one urine collection and then they were not at the magic number so it required lots of fluids and by 10:45 we were ready to start the chemo--- one of which was the 6 hour infusion that requires me to wake Grier every hour for 8 hours so they can make sure there is no blood--- I get the why!!! But the timing in my opinion is unacceptable for a child-- He fell asleep around 10:45pm-- almost as soon as the gave him the anti-nausea meds--- but woke up screaming and shaking around 11:15pm from a bad dream--- after that he was awake so I only had to wake him once around 2 am--- he was wide awake and was not that comfortable--- LOTS of fluids and feeling sick! Around 5:30am we could stop the required urine collection but he still woke up because of the amount of fluids he was getting--- but this time he would wake and go back to sleep--- He has slept all day! Tonight we MUST follow the same time line because making it earlier would not give the bladder and kidneys enough time to recover-- so I think he will be up anyway and I have had a nap so we are ready for the night shift! This has been this hardest way to start chemo because I am trying to be there for Hayes and Grace because I am not out of town but at the same time--- I am not nocturnal-- and I had to sleep today ! I have gotten all kinds of excuses of why.... but the fact is they should not do that to kids! PERIOD! After I left this afternoon I found out that Grier has a fever of 101--- so I am not sure how that will change our plans of discharge tomorrow--- I do know we will not be done until 10pm--- and I have already told them we are leaving no matter what time-- :) Grier is very quiet and does not feel good-- so I am hoping he perks up a bit by tomorrow before we come home--- OK-- off to the baseball game -- and then back to Levine's for the night! Amy