Wednesday, September 9, 2009




I just wanted to do a brief update about today's events-- it will be brief.... because I can barely see the screen and I can't type without hunting for each letter! We got to the hospital at 6am--- we left the Ronald at 5:45am and walk in the dark the 5 blocks -- it was dark outside and pretty quiet on the street-- We waited-- imagine that??? And finally started the pre-op process--- We had to talk Grier into putting on the gowns but he eventually complied if he could play with Dad's phone-- ragdoll blaster has been quite a bargaining chip lately! He did great as expected-- Dr. L came in to ask if we any other questions and he had to sign Grier's side where he was going to make the incision for the thoracotomy-- he did in purple pen and Grier giggled because it tickled--The anesthesiologists were really nice-- they let Grier push the propofol and carried him to the OR with the promise that they would take good care of him- That was about 7:45am- We went to the lobby/waiting room and waited for our beeper to go off-- and it did around 9:45-- we then moved tp the 6th floor to wait to talk to Dr. L-- he was getting ready to close Grier up-  At almost noon we were taken back to PACU-- and then finaly moved to the POU ( Pediatric Observation Unit)  The POU is a step down version of PICU-  He is there right now--- resting comfortably-- he has talked a few times-- He has a chest tube, catheter, and lots of leads and IVs-- He woke up around 3 and said real loud-- MOM... I have a question??  It surprised me a little because he had been just nodding for a while-- and I said-- OK... what is it?  And he said--- Am I naked under these blankets... ?  We laughed and said-- Yes.. And then he wanted to know about the catheter-! He does have a pain pump that he can push--- but he has not used it yet-- Occupational Therapy has come in to see where he was physically before today--- and that was easy..... he is an ACTIVE ATHLETIC 5 year old- They are going to come back tonight or tomorrow to get him up and moving- The news from Dr. L was he got what he saw and looked all around for more--- we will not know exactly what it is until Pathology comes back but there is an idea- Hopefully tomorrow will be better and we will be even closer to answering Grier's question... Am I done yet?  I know he wants to go home-- I thought Skype would help by seeing everyone but that really makes him asks CAN WE JUST GO HOME?--- And to be honest I am ready to go home too--- ! 

9 comments:

Mary Ellen Paine said...

Glad to hear he is awake and talking. Thought of you and prayed all day. Cannot imagine what you all have been thru-I just kept checking the blog.
Lots of prayers and hope are being sent to you. First thing this morning Mrs. Leary said Grier's surgery is today. I woke up at 5 and started my prayers.
Love to sweet Grier and all of you. Hope you get a little rest.
Lots of Love,
Mary Ellen

Anonymous said...

Glad to have your update and glad Grier is up and talking. We continue to send you guys love and prayers. And hope you are home soon.

Love to you and all !

Netha and all

Anonymous said...

You are a trooper just like Grier to keep us updated even when you are dead tired! Thank you, thank you! Maybe you and Jeff can get a good night's sleep knowing that Grier is safe and well-taken care of at MSKCC. Hope the "thing" that the doc got was just that -- a big fat NOTHING!

Thought about you/Grier/Jeff today at school and after school while I walked. Your friends are so faithful to your family -- just a BIG family to pray for you and send hugs and much love to you.

Sleep tight!

Betty G

Michael, Deborah and Kendall Edwards said...

Prayers and more prayers... for sweet brave Grier, his parents and family.
Hugs and kisses from the Edwards Family

Anonymous said...

We have talked about, and thought about, and prayed for Grier all day at the WDS. And I bet so many people have checked the blog all day waiting for an update. You are such an inspiration to be able to put so much in writing and stay connected to everyone, even as exhausted as you must be. What an amazing little guy Grier is, and we pray that God is holding all of you in His hands during this time.
Love,
Janis and all the WDS Teachers

Unknown said...

Thank you for the update Amy!

I'm so glad he's doing so well after Surgery! I'm sure Grier is going to make a quick recovery.

You all are in my prayers!

Love and God Bless,
Julie

Ashley Pollock said...

So many speed bumps on this journey. My heart goes out to all of you. But most of all I want to jump into the computer and wrap my arms around the most adorable patient ever! Love love love the naked comment.

Surely they will send you home to mend soon? The wait on the pathology report is rotten but I so hope they have some understanding of it all to share with you pronto.

Amazing how these little bodies heal. Grier is crazy strong.

xxoo.
Ashley.

Anonymous said...

Thinking about you all with prayers and e-hugs.

Stacy Sparks

Unknown said...

Amy - sending you vibes for strength and patience. Put some clothes on that boy and bring him home when you can.

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's