Monday, September 28, 2009






Things are changing a little!!! Grier perked up a little on Saturday night at Grace's family dinner--- he ate a "little" bit and drank a creme soda--- his favorite!! On Sunday, he had even more energy and did not nap--- He spilled the beans about the present he got Grace... but as Grace says... he gave it to me so he could play it--- maybe so but there was a wii marathon in my house on Sunday--- Grier gave Grace wii resort for her birthday and they have loved playing it!! Sunday was a great day for the festival too--- but Grier did not make it to the park-- just asked for a balloon each time we went over there--- :) We are still managing some side effects-- I will spare the details. We are now playing musical beds--- Grier and Hayes share a room and when he is sick we just put him in our room--- he used to sleep in the toddler bed but he is a little big for that now and as he says it is not so comfy!! Plus the crying wakes Hayes so we are trying to balance out who needs the most sleep--- and at the moment the "tween" is the winner! It is almost a no win situation because as soon as we get him back to his room we will be fighting the same side effects again--- So... Jeff and Hayes are roomies at the moment-- Grier had a clinic appointment today-- and after the initial tantrum about not wanting to go to the doctor anymore and screaming about going to the doctor for 20 days straight we made it-- he actually fell asleep from here to CMC--- and most know it is less than 3 miles!!! We decided to do a finger prick instead of accessing the port to check his counts and that went OK---I told him afterwards that his scream could have broken the glass it was so high -- and he smiled-- We left after a quick check up -- they called to tell us his counts and he is nutrapenic ( no immune system) but his blood and platelets are holding steady and he did not need a transfusion yet--- we have to go back to the clinic on Wednesday Morning to check again because it will happen soon- We also start the dreaded G-shots on Wednesday too--- can't wait to tell him that one!!! uggh---I hope I have not lost my touch--- hmmm not sure who I am kidding I was not very good at giving shots. Still praying for no fever-- he is doing better but he has lost 3 lbs--- does not seem like a lot but when you are only 40lbs -- it is !


more pictures on GoGrierGo.com-- they were taken today --- He went out side to practice soccer with Grace but came back in quickly--- he is just not up to that yet- And one picture of him playing the wii--- I should have taken a picture of him doing his "homework"--- it was pretty funny.... I will try to get a picture of that soon-

3 comments:

Anonymous said...

Coach John and the birthday girl...what a cute pair. Sounds like Grace is the lucky one with the sleep situation. I bet Jeff is missing his green chair. Tell the double digit queen I said Happy Birthday!

Love to you all,
Kerri

Nancy said...

Thinking of you constantly. I have the Go Grier Go! bracelet back on my arm. So glad to hear that Grier is feeling better. Happy Birthday to Grace. Hope she liked her pretty gift from you. Nancy Williams

Anonymous said...

Praying constantly for your little Grier. We are sending lots of hope and love from Greenville, SC.

Laura Robinson Black

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's