Thursday, May 17, 2007

Home again and this time it is a THURSDAY!!!

We are home!! Grier is doing well and taking a ton of medication-- We had a choice to stay tonight @ CMC and do some antibiotics tomorrow morning and a scan or go home with the possibility of coming back-- well-- We live too close not to choose home! At least we all will be sleeping in our own beds tonight ( except Grier--he seems to like my bed!) We will plan on doing a scan early next week as outpatient- and possibly start round 3 by next weekend--
He walked today and actually stood up by himself-- I think he is so much stronger and is not quite as scared-
We may go to the clinic tomorrow for more platelets-- if we do please say a prayer he does not get a fever after they are finished-- That would put us back in for a few days-- we know that drill all to well:)

Thanks for all the notes and visitors lately-- they made the time at CMC go by quickly-

6 comments:

Anonymous said...

You're home!!! That is wonderful. I hope you all get good rest tonight, that those antibiotics do their job, and that with the platelet visit tomorrow you are in and out of there in a flash. So glad to hear Grier did some walking, too. He is such a trooper!!!
Susan

Anonymous said...

Way to GO Grier GO!!!
So good to hear you are home again!! Hope you can stay there til the next round.
love the Baders

Anonymous said...

Dear Amy--
You and Grier deserve every moment's respite away from the hospital so I am glad to read that y'all are back home....and to be able to watch "Grey's Anatomy" from home too-- that's a plus...even if the show was a head twister. I trust that none of Grier's residents are as whacked out as that crew....if so, get them to tell you their stories as that could help time inpatient really pass quickly. :-)

Not a day goes by that you, Grier and your family are not on my mind. I saw a shirt today that read, "My mommy is my superhero," and you came right to mind. Right to mind! Superhero mom and a superhero little boy.
Love, Alex

Anonymous said...

Dear Amy & Jeff,
So glad you get to sleep in your own beds tonight!! Grier is smart- he knows the best place to sleep! So happy to hear that he is walking and standing- I know that must make him feel good too. Hope you have some restful days at home. I ran in a GBS race last weekend with Grier's braclet- he goes everywhere with me! You guys are all on our minds every day and in our prayers. Nolan keeps asking me- "Mommy, does Grier feel better today? I think chocolate would make him feel better". :) Take care and give Grier a hug from us- Love, Jennifer Hatley

Anonymous said...

So happy that you are home, Ames! I hope that today's visit to CMC is a good one and that you are back on Jameston in a hurry!

I bet Tucker was glad to have you home, too. He knows an ally when he sees one! And I certainly hope he still smells sweet.

Hug dear Grier and each one of your precious family, including Maggie for sure. You are in our hearts and prayers 24/7. Love to all, Susanne

Anonymous said...

I hope that your visit to CMC today will go well and that you'll be home again quickly!
You are all in our thoughts and prayers -
Cameron (Millie's mom)

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's