Grier did OK with the accessing of his port! I put numbing creme on it as we walked out the door to take Hayes and Grace to school--!We got the clinic about 45 minutes later and Nurse Dawn did a great job at minimizing the trauma and Sharon ( Child Life) came to help distract-- And it was over quickly and with only a few tears! I asked Grier if he thought the numbing creme helped and he said NO! :)
The accutane is going well--- Grier is very proud to tell people "I can swallow Pills!"-- He had a few moments of tummy pain and nausea-- but I am assured that it was due to accutane...!
So.. it was a good day at our Charlotte Clinic-- I wish that we could be treated there full time-- NY is nice but it is not home-- We just need a FULL-time Neuroblastoma Researcher on board at CMC!! We are still waiting on bone marrow results so I will let you know as soon as we know something!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Thursday, February 21, 2008
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
4 comments:
Grier's Dad is very proud of saying "Grier can swallow pills" too! That really is amazing at his age. We had a great visit at basketball practice on Tuesday ... it's always fun to see Grier work that vending machine and enjoy a snack. And bust out on some air hockey ! He looked great. Glad you're back home.
The Todds
Amy,
Glad to know that today went relatively well for Grier, and for you! Grier should be telling everyone that he can swallow a pill...that is amazing for a child his age...actually for many adults this is very difficult. He's awesome!!!!
Hope your evenings are getting easier and that you're settling back into your Jameston abode with ease. There's nothing like your own bed and pillow...even when sharing it with so many!
Thinking of you often and hoping you'll let me know if I can be of any help at all.
Tons of love...
Dina
Happy to hear that the day went well. I am very impressed with the pill swallowing. I still have a little trouble. Hope you are enjoying some down time and taking care of yourselves. I am sure you are happy to be sleeping in your own home.
Be well,get some rest and try to relax.(easy for me to say)
We are always thinking of you,
Love,
The Paine's
Yea! So glad to hear you had good news on the bone marrow results. Yes, when it was test time for me I remember how nervous I would get. But it is always best to be tested and know one way or the other. Grier should be proud of himself for being willing and able to swallow pills. I'm surprised that someone his age can do that but Grier has proven to all of us he is an amazing kid. And he has an amazing family to support him. You are in our daily thoughts and we will continue to think positive thoughts for all of you. Sue E.
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