Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Wednesday, February 6, 2008
I do not need a scooter.. I have an IV pole!
Grier did fine today as usual-- we had an addition to our schedule-- after the first round of RT (Radiation Therapy) we were told to go back to the PDH and WAIT to see the team from surgery!! Oh yeah-- he is having surgery on Friday!! We talked about the new medi-port he will get and the time line-- no major surprises except the surgery could take 2 hours-- for some reason I do not remember the first hickman taking that long--- And I was quickly reminded that I was not in a good state of mind last March 30th to remember those details!!
Our plan is to go to the hospital at 6:45 on Friday morning--- no worries there since I am now accustomed to waking at 5:33! Yes-- The noise happens every morning! Then he will check in with the team and then head down for RT--- HOPEFULLY they will work it out so he can stay asleep and head up to the OR right after RT!! Otherwise .. they will do the quick wake up we have been doing and then we will wait until 9-- to go to the OR-- he will then recover in the PACU!! Susan can you believe it?--- we actually will recover in a room!! After that they will send him upstairs to the PDH to be checked again-- and if all goes well sent back to the RONALD!! It will be a long day to say the least--
Tomorrow is the last day of double sedation-- so it is something to look forward to!!
Thanks again for the notes and pictures--- And the shirt with his name on it from Alphabet Soup!! Thanks Dianna!!! You know I am in withdrawal from shopping!! I am told it is a southern thing to have things monogrammed-- OH well-- I guess he sticks out in NY!!!!
Check out the picture-- that was taken this am at 7:00am!!! He likes to ride the IV pole from the PDH to RT---Can't wait till we ride a scooter at home instead!!!
I forgot to add --- Betty and Mary Ellen-- Jeff has bracelets!!! Tell me what you need and we can get them to ya!! And if anyone else needs one too--- just let me know!
CHECK THIS OUT FOR LCH (Levine Children's Hospital)-- Grier played this at MSKCC and when I went online to see how to donate one in honor of someone... I found out there was a contest and LCH was listed as the NC hospital-- Vote for LCH to get a game system-- they are fun for the kids!! You can Vote once a day!
www.colgate.com/showthelove
Colgate-Palmolive and Starlight have teamed up again this year to help seriously ill children and their families cope with the pain, fear and isolation of illness. The outpouring of support from 2007 Colgate-Palmolive and Starlight national online Fun Center voting contest was wonderful and resulted in an overwhelming success, with more than 2 million votes cast. This year, Colgate-Palmolive is awarding all 30 participating hospitals a Starlight Fun Center – a mobile entertainment unit that kids can enjoy at their bedside or anywhere in a hospital setting.
And now you can make an even bigger difference. The ten hospitals that receive the most online votes will receive two Starlight Fun Centers, generously sponsored by Colgate-Palmolive. That's double the amount of fun and laughter.
Go www.colgate.com/showthelove to click on a hospital and place your vote. One hospital in each state listed will receive a Fun Center.
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
4 comments:
Cute picture, cute guy! Love that darkness creeping back onto his head!
I love how you and Grier find the wonderful things in each day -- riding an IV pole!! Who would think?? (except Grier)
I know Friday will be a bear of a day, but you know how to handle those well -- you've done it many times. The end product of the surgery will be better--
Got to get back to the Carolina-Duke game -- Duke is up by 3 at the half, so need to cheer the Heels on. Go Heels! Go Grier Go!!
Love and prayers,
Betty G
Look at Grier's hair! The picture might be not as true as seeing him in person, but he looks like he has a really COOL Buzz cut!!
I hope everything goes great on Friday. Charlie and Jack are looking forward to swimming with Grier soon!! We must shop for swimsuits when you get home!
Trisha
Sorry Carolina fans. Go Duke. Grier looks great, like the fuzz coming in. Too cool. Take care, The Stack Family
What a great picture. Those beautiful curls will be back before you know it. We will be thinking and praying for you tomorrow. I am sure it will be a long day,but I am so glad your mom is with you.
I need about 5 bracelets. There are a few people at First Pres and also my family that would love to have them. I will be happy to go by and get them.
Lots of love to you today and always,
The Paine's
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