It has been a long time but here is an Update-

Here is a long overdue update!! We had an extremely busy weekend—5 baseball games in 3 days in Indian Trail, a cookout with family and friends for Memorial Day, swimming at the pool, shopping for summer clothes and a warning ticket from a friendly police officer in Matthews!!! (My tag had expired—I was not speeding!) I am telling you this because we had a pretty normal week ☺

Last weeks test went OK—Grier did great— We thought he was going to be in some discomfort after the bone marrow test and he made it through with flying colors—he came home ate a doughnut and was ready to play—loves playing baseball while sitting in a chair-

Grier went to clinic on Tuesday to make sure his counts were OK to start the 3rd cycle of chemo—Everything looked good so we were admitted and chemo started around 3pm on Tuesday- This cycle is different from the previous rounds—it is two different types of chemo and it runs for about 3 hours total—we were concerned about the cisplatin because it seems to cause the most nausea and vomiting but so far he has been fine ☺

We also heard that the results from the CT scan—there has been shrinkage in the tumor ☺ Some areas like the abdominal area has shown a greater percentage than the lung area— It is still not small enough to remove surgically. But it is responding to the chemo—and I have to remember that this scan is after 2 cycles and we have 4 more to go- The bone marrow test came back “clean”—no neuroblastoma cells were found in the bone marrow—This was great news for us to hear-

This cycle is four days instead of the three so our hope is to go home by Saturday. Chemo will end Friday but with cisplatin you have to give a lot of fluids after to flush out the kidneys to avoid damage—He is ready to go and is waiting for the medicine to end—This is a good sign since he thinks it is normal to be at home and not at CMC☺