Today was super long-- we got to clinic at 7-- no one really was there until 7:40-- so I am not sure what the rush is with their time! Grier's scan was around 8:15-- it is about an hour and a half-- them he wakes from anesthesia and we are on our way-- Since we were leaving we wanted to make sure we had the "green light"-- so we waited to talk to the team-- We finally caught up with Dr. Kushner and the scans were not ready to read on the computer yet-- so we waited an hour to talk to him again-- By 3:15 we were still waiting and starting to panic because we had to meet our car at the Ronald and check out!! 3:20-- we met with him again and found out this MIBG showed no active NB! Thank God! Now, we wait 5 days for the bone marrow to come back--
We will have to be back in NY on the 13th-- this will be a long stay-- possibly until February-- I keep going over my calendar trying to work it so it is not so long!! I will update later on the details of the next step of his treatment-- Everyone who deals with NB knows it is never ending-- you are always worried about relapse! But for now-- we will enjoy the next fews days at home and worry about the details on Monday!!
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
9 comments:
I am so thrilled for you for wonderful news. I hope you can enjoy these few days. We will be praying and thanking God for more good news.
Please know if I can do anything during your long stay,I am here to help.
Get some rest and we will continue to have you always in our hearts.
The Paine's
GREAT NEWS! So happy to hear that the long day was worth it -- no active NB, and you were still able to get home last night! Enjoy the b'ball games today!
We are all here for you over the long haul, so let us know what you need. I'm available to bring H&G home any day, so let me know if you need me.
Have a great weekend! Love and prayers always,
Betty G
Always thinking of you, Amy, and celebrating with you bits of good news (Yea, no active NB!!!) and praying for much more of the same. I'm a "grandma" who has time to help, so give me a yell if there's any way I can be of help to your precious family!
Martha M.
Oh Amy - what wonderful news to wake up to this morning! So happy to hear that you'll be able to spend some time at home together before your next big trip.
Let me know if there's anything I can do. Leila and I would love to run errands or just stop by for a visit sometime and give you a hug :)
Love to you all!
N
Fantastic news! I know you are all still just floating on air...glad you are home!
Great News! So glad everything turned out well and that you are back in Charlotte as planned.
Hope you enjoy the weekend and warmer weather in the next few days.
Thinking of you all with love and prayers...
Dina
I'm so glad to hear your great news. '08 is going to be a year of only good news. Joe & Mary were smiling this morning when I saw them and then heard the good news. Sue E.
Hi, I have to share a sweet story with you about Jillian and Grier. Over the holidays I suggested that we go and get a "holiday" hair cut, just a little trim. Jillian told me "no" because she was growing her hair for Grier. Well, we had talked about cancer and chemo and the side effects. She had recently seen pictures of Grier and simply decided her hair was going to go to Grier! Well, we need 10 inches so we have quite a lot of growing to do. We were having dinner with friends last night and the Mom noticed how long Jillian's hair has gotten. So, Jillian, of course, told your family's story and how her hair was going to Grier. She told the story with such a positive and happy tone to it. I want to thank you for shedding such a positive light on cancer. Growing up it was a word spoken in quiet whispers and fighting it seemed remote. My children see it has a battle to be won and opopurtunities to reach out and help. So, thank you to you and your family. Now, I know Grier will grow hair of his own, but in Jillian's heart her hair is going to Grier! Love, Victoria
This truly is GREAT news! Praise to God for His hand on Grier. Remember for all who can, to donate to a cause that will help bring cure and new treatments for Grier and kids like Grier.
Please don't hesitate to let us all know which group would be best to donate to in honor of our local Charlotte hero, GO GRIER GO!
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