The last few days have flown by--- Grier is doing very well at home!! He likes to play in the yard, hitting baseballs and driving his truck- We all went to Grace's basketball game-- which was fun-- it is hard to believe that going places as a party of five is not the norm at our house anymore--!! Sometimes I even catch myself at a restaurant counting!! Also, he has discovered he has hair coming in!!! You should have seen him go to the mirror and look at the black shadow on his head! He said that was cool!
We do have a plan right now--- Grier and I will leave around 7:30 on Tuesday night to fly back to NYC-- We are scheduled on Corporate Angels-- That used to not make me as nervous-- but now that we have had flights cancelled a few times- it actually stresses me out!!! OK-- I admit it!! I do get stressed thinking about all this-- We will get to NY late Tuesday night and go to clinic and get cleared for anesthesia on Wednesday morning sometime-- He will have his radiation set-up after that and be done with the first round-- Thursday through the following Friday will be twice a day-- 7:30 am and then again around 1:30-- Then we will have the weekend off and start 3F8 again on the 11th!! Probably home around the 16th-- if everything goes like it is suppose to-- :)
We have been busy but have had time to slow down too-- Jeff and I had a great low-key night with Katherine and Andy-- And I am going to a movie with some friends today--
***On a side note
I read something the other day and I wanted to adapt it to our life-- So many people tell me they do not know how we are doing this-- and I just say there is no choice-- You drop everything and just do it-- I’ll admit…sometimes this is tough. There, I said it. OK…I’ll add to it…sometimes it’s really tough. The stress of trying to act normal in front of your child in a completely abnormal world; the stress of waiting for test results; the stress of keeping up with work and a house so many miles away; the stress of not letting anything fall through the cracks from grocery shopping to bill paying; the stress of watching your child writhe in pain during antibody treatment even though you know that treatment is helping him; the stress of having to hold him down to get a painful injection; the stress of hearing about other children who are not doing well; the stress of not feeling like you’re doing enough, fast enough to help find a cure; the stress of trying to let things just roll down your back and not let them get to you; the stress of answering questions all the time about NB trying to not let Grier, Hayes, or Grace overhear something out of context! And of course all these things do not just apply to us but to any family dealing with cancer with their children-- We are very lucky to have a great support group that has given us what we need to get through this day by day!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Sunday, January 27, 2008
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
6 comments:
Hi Amy & Jeff,
After reading your blog today, I found the perfect quote...
"Know what you want to do, hold the thought firmly, and do every day what should be done, and every sunset will see you that much nearer your goal."
I know the day will come when this will all be behind you and you will have reached your goal of bringing Grier home healthy and happy. Can't wait...go grier go!
Love,
The Graysons
Your blog is very thought-provoking today -- and what you and Jeff are doing is the best you can do and it is working for you and your family. Stressful, yes, but working and I continue to commend you both for all that you do to keep your family and home running as smoothly as possible.
So glad you got some R&R this weekend before heading back to NYC for more busy days. Can't wait to see the pictures of Grier's hair coming back -- maybe he'll be a blonde or redhead!! He won't know what to do with hair again!
I pray for lots of things for people I love these days and I will add the prayer that your Corporate Angels flight will not get cancelled! As with many health issues, timing is critical and we want Grier to begin radiation on Wednesday so things can proceed as you have planned. Amy's plans staying on track = less stress for Amy!!
You and Grier take care, know that you are loved and in my prayers, know that your family at home will be well-cared for, and know you are strong despite the stress that won't go away!
Betty G
Wow! How hard it is for me to respond to your incredible verse on life now with cancer. No one can come close to sharing with you the frustration, pain, sadness, stress, tiring day-to-day that you and Jeff have now undergone for nearly 10 months...HOLY COW! Where has the time gone and I'm sure you wish it would all come back as I also wish it could for you. Your support must be incredible for you to be able to put that awesome smile on your face and to share your pain with so many. You're all amazing...though I know you wish you were not thought of in this light only to go back to the way life used to be. I am hopeful that there are much beter tomorrows in store for Grier and that the antibody treatments he is receiving will truly work MIRACLES to restore his body to the way it should be...healthy, happy and free of fear and pain...aside from a skinned knee. I think of you all so very often and want only for happy days and far off thoughts of these days gone by.
Praying for schedules to stay on track and another enjoyable day tomorrow before you're off and running again. Thinking of you always with so much love...
Dina
Once again you amaze me. You do things with such grace.
We are happy to hear you had some normalcy. Here is to some more of that.
As always in our thoughts and prayers,
The Paine's
Amy,
I thought of Grier during a Bible Study video tonight - God still works miracles and He will get help Grier get through this trial!
I am amazed at how you hold all the pieces you are juggling together. I hope your next trip and treatments go well. We'll be thinking about you all!
Stacy Sparks
Saw Mrs. Leary today, quite by accident, and introduced myself as Mitch's Mom and Friend of Grier's...she knew me right away. As with myself, so many at FP-WDS feel as though they are not doing anything to help with your day-to-day struggles. Please let us help with anything you might need. As I have said in the past, I can pick up toilet paper at the grocery just as good as you...maybe better? CALL ON ANYONE YOU KNOW FOR ANYTHING AT ANY TIME! You may be surprised just how many good friends you have and you don't even know it yet.
Know that you are in our hearts and prayers non-stop with love and determination that complete healing WILL happen for Grier!
I just read "The Graysons" blog from yesterday...what a great quote! You are doing everything you need to do, and sometimes much more, and the goal is nearer for Grier and for you and Jeff. This will be successful!
Tons of love...
Dina
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