Grier had a pretty stable night-- He did get a fever during the night but they said that was to be expected after a surgery like this- He also received blood and remained heavily sedated -- They are weaning him off the ventilator as I type-- so by this morning he will wake up and be mad as I am told-- they want that to happen and then they will pull the tube out-- They will use a oxygen mask or a cannular? Should be interesting- Susan knows how he loves that! They asked how he did with either and I laughed and said we did blow bys-- because he freaked out so much! Anne -- Do you remember holding that tube all night?
We have not heard any results of biopsies -- or marrow results-
I can only get to caringbridge from NY-presbyterian so I can not wait to go to the Ronald to read the blog- I also have my phone off-- no phones in PICU!
still looking up-
Amy
ps- Hayes, Grace, and my mom leave today at 2:45--
I will update later with better details-- I am in a hurry this am!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Tuesday, October 30, 2007
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
8 comments:
Amy, I just wanted you to know that my family and I have been praying for you and your family over these past months and especially these last few days. We are glad that he was finally able to have the surgery and pray for his continued recovery. You guys will continue to be in our thoughts and prayers,
Sincerely, Kathy Cates Cisne
Be of courage, and He shall strengthen your heart, all ye that hope in the Lord. Psalm 31:24
Go Grier Go!
We love you,
The Graysons
Apparently I'm not as tech savvy as I thought! I'm messing up my post, but I meant to say that I would love to come see y'all when/if you feel ready for a visitor. I'm not too far away in Brooklyn. 917-748-1245.
Amy - What a blessing that the surgery was shorter than expected and that Grier had a restful night!! We continue to pray for Grier's speedy recovery, for you and for Jeff that you all can get some rest, and for Hayes, Grace and your mom in their travels and return to Charlotte.
You continue to amaze me with your strength and positive attitude. What a true inspiration for all of us moms!
We love you all and can't wait to get you all home again!
Nancy A.
Our thoughts and prayers continue. Thanks so much for keeping us up to date with the blog. I'm checking it several times a day!!! Love to all your family. Please give you Mom a BIG hug from us.
Nancy Williams
Wow...getting off the vent already...that's great! Good luck today. All my nurse friends at UNC and Wake Med Cary are rooting for you and praying for a smooth recovery. Keep hanging in there!
Your family is in our hearts & prayer. Tina McGill ~ ETES
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