Today was a day of no change until tonight around 8pm-- He started talking a little bit and I quickly called home so everyone could talk to him while he was in the mood-- :)
It has been 1 week since the surgery-- hard to believe since we have moved so many times- I thought we would have been home by now-- :)
After talking on the phone-- he colored a picture in a coloring book-- and then said he wanted to walk to the playroom-- So, we got all his cords together and unplugged the pump and went for a walk-- He played with the kitchen in the playroom for a few minutes but quickly got tired so we went back to our tiny room-- As soon as he got back in the bed he was asleep-
His still has his NG tube in but it is not suctioning-- just using gravity- So far so good with the nausea- He is still on 2 meds for nausea but it seems to be working better-- The surgeon will check tomorrow again and see what the next step is--
We have seen 2 roommates check out-- so our time has got to be close-
Thanks for all the cards--especially the packet from 3rd graders in GA-- the letters were fun to read-- Kids say the perfect thing to kids-- ! Also, the cards from First Pres Weekday school-- they were great!
We have decided to come to Charlotte for chemo-- basically chemo is chemo and CMC can do the same as NYC-- So, we think the benefit of being at home or on 7 tower would out weigh the convenience of already being in NY- Grier is so much more comfortable with Shannon, Scrappy, and the rest of the nurses on 7T-- Also I want Grier to get a little stronger before we knock him out again with a heavy dose of poison! We will have to stay in close contact with MSKCC so we can get back here at the optimal time for tests -- and discussion of 3F8-- But we will get back here in time!!!