Today was more of the same-- except late in the day he did get to add soft foods to his diet-- The NP asks him what he would want to eat-- and of course he wanted a turkey sandwich :)--- OH well-- he had to settle for pudding, yogurt, eggs, applesauce, pound cake-- etc.-- he tried a little of each but was not that impressed by any of it-- He did drink a lot of Gatorade today-- and then he heard there was a hot chocolate machine-- so that was the number #1 request-- We took it ALL very slow today- with only one set back this morning-- Honestly, the days are running together-- and my updates sound like a broken record-- but I hope tomorrow is the day they tell us to go "home" aka the Ronald!
He went to the play room and played with the cash register again-- and tonight a volunteer came around to each room announcing "BINGO Night"--She asked Grier if he wanted to play bingo and explained the prizes-- he said "yes"-- and after she left Grier asked Jeff and I " What is Bingo?"-- I laughed for a second and then thought how sad that he knows about TPN, chemo, and everything else in this cancer world but has no idea what Bingo is! So, I was determined to get him down there-- we told him he could win something so he went-- we made it in the door and lots of "big" kids were there and he was ready to leave-- the nice volunteer gave him a prize anyway :)
Thanks again for all the cards.. tons of cards from Covenant Kids Care, more pictures from First Pres WDS, gift cards and cards of encouragement from friends!! Also-- a huge thanks to John Hoskins for putting Hayes' fan up!! Thanks so much!! He was very excited and that was a project I could not finish before we left- And last but not least tonight I am going to sleep on new sheets!!! Thanks Pat-- This will help me not have to rush to wash their sheets before we leave-- Theirs are washed and ready for the next family :)
It is hard to believe Sunday will be three weeks here-- especially since the plan was for 8 days! We do not have a date to come home yet-- but I am packed and ready--:) Even if it will be a transfer to a different hospital-- it will still be great to be in Charlotte-- I am looking forward in seeing grass even if it is not green!!
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
5 comments:
Get that boy a Bingo set for Christmas -- Grace will certainly play with him!! So happy that he is feeling up to playing and beginning to eat a little something. Sounds like he is beginning to be more like Grier as he feels better and better.
Glad so many cards are coming your way -- makes you think of home and know how much love there is here for your family! I know you in NYC and the Charlotte family are both counting the days -- wish we knew a number for the countdown -- till you can wing your way home. What a happy day that will be for everyone!
Hope tomorrow is better than today with more play, more food, more cards and letters, more walking and talking, and one day closer to coming home!
Love and prayers tonight, as always.
Betty G
Amy,
Believe me when I tell you that you do not sound like a broken record. I am always so excited when you post a new update no matter what the content...I just want to hear about Grier and know what he's up to...hoping that his healing is moving in the forward direction.
I will say that we own a Bingo set and Mitch always likes the idea of playing; however, it ends up being a bit long for him. He usually starts by spinning and handing me the balls to call out. Then, he wants to spin and call out. This means that he hands it to me and then I whisper back to him and he calls out. After this, he will decide that he wants to put the balls into the holder in addition to the other duties...maybe it's this lengthy process that makes the game SOOOO very long! In any event, we do like Bingo in our house and we would be happy to loan it to Grier or even visit in the hospital and play a round or two! We will look forward to that!!
Anxious as you are to know when you will come home. Knowing that each day passed is one day closer to home for Grier! I am certain the girls on 7 will be delighted to have him back again and how awesome it will be for you to be so close to home once more!
I sure wish I could visit with you and see Grier's sweet face in person. The black & white picture on the blog is so precious...I find myself staring at it when there is not a new update.
Mitch continues to talk about Grier and how he will sing his new songs for him when he sees him next. They have learned the cutest Thanksgiving song and I know he will love to share it when Grier comes home.
Prayers for good sleep, super-fast healing, more eating and hot chocolate (Abby's favorite), and back to the Ronald very soon...as well as to Charlotte immediately following!
Love to you all...
Dina
Would love to see some new pics of Grier -- how about playing with the cash register or drinking hot chocolate???
Love to you, Jeff, and Grier on this beautiful morning!
BettyG
You could never sound like a broken record. I am still in total awe of how you blog all the time with so much going on. We so appreciate you keeping us all up tp date.
Glad to hear things are a little better and maybe today will be the day they tell you to go home.
Everyone in Charlotte is waiting to give you a big welcome when you come home.
Hope you get some well deserved rest along with Jeff.
As always you are in our hearts and prayers.
The Paine's
Hi Amy-
I'm not sure if you will remember me or not- I lived beside you and Jeff in Scotland Colony apartments many, many years ago! I have a 4 year old at First Pres WDS so I have been following Grier's story and thinking of and praying for you all each step of the way.
I have a great Bingo game for Grier- it's called Zingo Bingo- our whole family loves playing it- and it would be a great thing to pass time while in the hospital or at the Ronald. I think you can get them anywhere but if you can't find one, let me know and I will send one to you. First Pres doesn't have school today so I have already played about 10 rounds of it :)
Hoping today is a better day and hope you will be back in Charlotte soon.
Take care,
Denny O'Leary
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